Literature DB >> 1394855

Service needs of families of children with severe physical disability.

P Sloper1, S Turner.   

Abstract

Service contacts, perceived helpfulness of services and needs for help were investigated in a sample of 107 families of young children with severe physical disability. Many families were in contact with a multiplicity of different services and overall frequency of contact was high. Despite this, there was evidence of considerable unmet need, particularly in the provision of information to families. Families with the highest levels of unmet need were likely to have experienced high levels of strain from life events and to have children with mental retardation as well as physical disability, fathers in those families were more likely to be unemployed and mothers were more likely to use passive optimism in coping with child problems. The findings indicate the importance of services which are easily accessible to parents, the provision of information to parents about such services, the co-ordination of services through a 'link' person and the accurate and individual assessment of family needs.

Entities:  

Mesh:

Year:  1992        PMID: 1394855     DOI: 10.1111/j.1365-2214.1992.tb00359.x

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  14 in total

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2.  Health services experiences of parents of recently diagnosed visually impaired children.

Authors:  J S Rahi; I Manaras; H Tuomainen; G Lewando Hundt
Journal:  Br J Ophthalmol       Date:  2005-02       Impact factor: 4.638

3.  Maternal perceptions of pediatric providers for children with chronic illnesses.

Authors:  D F Perry; H T Ireys
Journal:  Matern Child Health J       Date:  2001-03

4.  Study protocol: determinants of participation and quality of life of adolescents with cerebral palsy: a longitudinal study (SPARCLE2).

Authors:  Allan F Colver; Heather O Dickinson
Journal:  BMC Public Health       Date:  2010-05-26       Impact factor: 3.295

5.  Engaging families in health services research on childhood visual impairment: barriers to, and degree and nature of bias in, participation.

Authors:  J S Rahi; I Manaras; H Tuomainen; G Lewando Hundt
Journal:  Br J Ophthalmol       Date:  2004-06       Impact factor: 4.638

6.  Exploring the Effects of Power Mobility Training on Parents of Exploratory Power Mobility Learners: A Multiple-Baseline Single-Subject Research Design Study.

Authors:  Lisa K Kenyon; Naomi J Aldrich; John P Farris; Brianna Chesser; Kyle Walenta
Journal:  Physiother Can       Date:  2021       Impact factor: 1.037

7.  Study protocol: SPARCLE--a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy.

Authors:  Allan Colver
Journal:  BMC Public Health       Date:  2006-04-25       Impact factor: 3.295

8.  Do parents of children with attention-deficit/hyperactivity disorder (ADHD) receive adequate information about the disorder and its treatments? A qualitative investigation.

Authors:  Rana Ahmed; Jacqueline M Borst; Cheng Wei Yong; Parisa Aslani
Journal:  Patient Prefer Adherence       Date:  2014-05-08       Impact factor: 2.711

9.  Co-creation of a digital tool for the empowerment of parents of children with physical disabilities.

Authors:  M W Alsem; K M van Meeteren; M Verhoef; M J W M Schmitz; M J Jongmans; J M A Meily-Visser; M Ketelaar
Journal:  Res Involv Engagem       Date:  2017-12-11

10.  Impact of Diagnostic Practices on the Self-Reported Health of Mothers of Recently Diagnosed Children with ASD.

Authors:  Phil Reed; Lucy Picton; Nicole Grainger; Lisa A Osborne
Journal:  Int J Environ Res Public Health       Date:  2016-09-07       Impact factor: 3.390

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