Literature DB >> 28039658

Factors Associated with Parental Adaptation to Children with an Undiagnosed Medical Condition.

Tatiane Yanes1,2,3, Linda Humphreys4, Aideen McInerney-Leo5,6, Barbara Biesecker7.   

Abstract

Little is known about the adaptive process and experiences of parents raising a child with an undiagnosed medical condition. The present study aims to assess how uncertainty, hope, social support, and coping efficacy contributes to adaptation among parents of children with an undiagnosed medical condition. Sixty-two parents of child affected by an undiagnosed medical condition for at least two years completed an electronically self-administered survey. Descriptive analysis suggested parents in this population had significantly lower adaptation scores when compared to other parents of children with undiagnosed medical conditions, and parents of children with a diagnosed intellectual and/or physical disability. Similarly, parents in this population had significantly lower hope, perceived social support and coping efficacy when compared to parents of children with a diagnosed medical condition. Multiple linear regression was used to identify relationships between independent variables and domains of adaptation. Positive stress response was negatively associated with emotional support (B = -0.045, p ≤ 0.05), and positively associated with coping efficacy (B = 0.009, p ≤ 0.05). Adaptive self-esteem was negatively associated with uncertainty towards one's social support (B = -0.248, p ≤ 0.05), and positively associated with coping efficacy (B = 0.007, p ≤ 0.05). Adaptive social integration was negatively associated with uncertainty towards one's social support (B-0.273, p ≤ 0.05), and positively associated with uncertainty towards child's health (B = 0.323, p ≤ 0.001), and affectionate support (B = 0.110, p ≤ 0.001). Finally, adaptive spiritual wellbeing was negatively associated with uncertainty towards one's family (B = -0.221, p ≤ 0.05). Findings from this study have highlighted the areas where parents believed additional support was required, and provided insight into factors that contribute to parental adaptation.

Entities:  

Keywords:  Adaptation; Coping efficacy; Hope; Parents; Social support; Uncertainty; Undiagnosed

Mesh:

Year:  2016        PMID: 28039658      PMCID: PMC5493508          DOI: 10.1007/s10897-016-0060-9

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  37 in total

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Review 8.  Common adaptive tasks facing parents of children with chronic conditions.

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10.  Stress and adaptation in mothers of children with cerebral palsy.

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Journal:  J Pediatr Psychol       Date:  2003 Apr-May
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  9 in total

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Review 4.  Genetic Counseling and Genome Sequencing in Pediatric Rare Disease.

Authors:  Alison M Elliott
Journal:  Cold Spring Harb Perspect Med       Date:  2020-03-02       Impact factor: 6.915

5.  Paternal adaptation and related factors in Iranian fathers.

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Journal:  JBRA Assist Reprod       Date:  2022-04-17

6.  Understanding Adult Participant and Parent Empowerment Prior to Evaluation in the Undiagnosed Diseases Network.

Authors:  Christina G S Palmer; Allyn McConkie-Rosell; Ingrid A Holm; Kimberly LeBlanc; Janet S Sinsheimer; Lauren C Briere; Naghmeh Dorrani; Matthew R Herzog; Sharyn Lincoln; Kelly Schoch; Rebecca C Spillmann; Elly Brokamp
Journal:  J Genet Couns       Date:  2018-03-01       Impact factor: 2.537

7.  How do parents deal with their children's chronic kidney disease? A qualitative study for identifying factors related to parent's adaptation.

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9.  Determining the Topic Evolution and Sentiment Polarity for Albinism in a Chinese Online Health Community: Machine Learning and Social Network Analysis.

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  9 in total

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