Literature DB >> 12973583

[Government Directive MS # 822/01: unique aspects of hemoglobinopathies for public health in Brazil].

Antonio Sérgio Ramalho1, Luís Alberto Magna, Roberto Benedito de Paiva-e-Silva.   

Abstract

By including hemoglobinopathies in the National Neonatal Screening Program (PNTN), Brazilian Ministry of Health Directive # 822/01 has taken an important step towards recognition of their relevance for public health in the country. However, except at a few specialized centers, the public health care system is unprepared to meet the goals laid out under the directive. As the first step to effectively implement the guidelines, it is thus necessary to disseminate information on hemoglobinopathies among health professionals working in public health, especially those involved in neonatal screening. This article discusses some of the unique characteristics of hemoglobinopathies in comparison to other metabolic disorders included in the National Neonatal Screening Program. The authors also analyze potential sources of misunderstanding that could jeopardize the program's outcome.

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Year:  2003        PMID: 12973583     DOI: 10.1590/s0102-311x2003000400040

Source DB:  PubMed          Journal:  Cad Saude Publica        ISSN: 0102-311X            Impact factor:   1.632


  8 in total

1.  Emergency care necessity for sickle cell disease patients at Rio de Janeiro State Coordinating Blood Bank.

Authors:  Mario Sant'anna Santoro; Haroldo José de Matos; Delaine Fidlarczyk
Journal:  Rev Bras Hematol Hemoter       Date:  2011

2.  [Neonatal screening for hemoglobinopathies in São Carlos, São Paulo, Brazil: analysis of a series of cases].

Authors:  Camila de Azevedo Silva; Letícia Botigeli Baldim; Geiza César Nhoncanse; Isabeth da Fonseca Estevão; Débora Gusmão Melo
Journal:  Rev Paul Pediatr       Date:  2015-01-23

3.  Trends in mortality and hospital admissions of sickle cell disease patients before and after the newborn screening program in Maranhão, Brazil.

Authors:  Ana Ranoy Gomes Lima; Valdinar Sousa Ribeiro; Dario Itapary Nicolau
Journal:  Rev Bras Hematol Hemoter       Date:  2014-11-21

4.  Anti-Toxoplasma gondii antibodies in patients with beta-hemoglobinopathies: the first report in the Americas.

Authors:  Marina Neves Ferreira; Claudia Regina Bonini-Domingos; Isabeth Fonseca Estevão; Clarice Lopes de Castro Lobo; Gisele Cristina Souza Carrocini; Aparecida Perpétuo Silveira-Carvalho; Octávio Ricci; Luiz Carlos de Mattos; Cinara Cássia Brandão de Mattos
Journal:  BMC Res Notes       Date:  2017-06-14

5.  Clinical-Epidemiological Characteristics and Mortality in Patients with Sickle Cell Anemia: A Retrospective Cohort Study of 1980 at 2018.

Authors:  Carolina Mariano Pompeo; Marcos Antonio Ferreira Júnior; Andreia Insabralde de Queiroz Cardoso; Mercy da Costa Souza; Oleci Pereira Frota; Felipe Machado Mota; Maria Lúcia Ivo
Journal:  Int J Gen Med       Date:  2022-02-02

6.  The burden and quality of life of caregivers of sickle cell anemia patients taking hydroxyurea versus those not taking hydroxyurea.

Authors:  Luiz Bernardino Lima da Silva; Maria Lúcia Ivo; Albert Schiaveto de Souza; Elenir Rose Jardim Cury Pontes; Alexandra Maria Almeida Carvalho Pinto; Olinda Maria Rodrigues de Araujo
Journal:  Rev Bras Hematol Hemoter       Date:  2012

7.  Patients with sickle cell disease taking hydroxyurea in the Hemocentro Regional de Montes Claros.

Authors:  Fernanda Kelle de Souza Santos; Caroline Nogueira Maia
Journal:  Rev Bras Hematol Hemoter       Date:  2011

8.  Comments on: "Clinical, hematological and genetic data of a cohort of children with hemoglobin SD".

Authors:  Maria Stella Figueiredo
Journal:  Rev Bras Hematol Hemoter       Date:  2016-06-22
  8 in total

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