Literature DB >> 12849570

The universal, situational, and personal needs of cancer patients and their main carers.

K Soothill1, S M Morris, C Thomas, J C Harman, B Francis, M B McIllmurray.   

Abstract

The importance of psychosocial factors in the cancer journey for both patients and their carers has been recognised in UK health policy. The aim of this paper is to consider--(1) which needs are regarded as important by patients and their carers; (2) which are the unmet needs of patients and their carers. The study focuses on the responses of 233 paired cancer patients and their carers derived from a cross-sectional questionnaire survey in three health authorities in North West England. The majority of patient-carer pairs expressed the importance of having good relationships with health-care professionals and receiving good-quality information. These can be identified as "universal" needs. A minority of patient-carer pairs expressed the importance of other kinds of needs. These items were mainly to do with managing daily life, emotions, and social identity and can be identified as "situational" or "personal" needs. Where there were discrepancies between patients and carers, patients were likely to identify more needs as important. In contrast, carers have more unmet needs, reflecting their comparative neglect. Broadly, "universal" needs are being met, but "situational" and "personal" needs, particularly among carers, are relatively unmet and require greater attention on the part of nurses and primary care professionals.

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Year:  2003        PMID: 12849570     DOI: 10.1054/ejon.2002.0226

Source DB:  PubMed          Journal:  Eur J Oncol Nurs        ISSN: 1462-3889            Impact factor:   2.398


  18 in total

1.  Words matter: distinguishing "personalized medicine" and "biologically personalized therapeutics".

Authors:  Nathan I Cherny; Elisabeth G E de Vries; Linda Emanuel; Lesley Fallowfield; Prudence A Francis; Alberto Gabizon; Martine J Piccart; David Sidransky; Lior Soussan-Gutman; Chariklia Tziraki
Journal:  J Natl Cancer Inst       Date:  2014-10-07       Impact factor: 13.506

2.  Complementary medicine in cancer care: adding a therapy dog to the team.

Authors:  Dawn A Marcus
Journal:  Curr Pain Headache Rep       Date:  2012-08

3.  The concept of coping in male spouses of Iranian women with breast cancer: A qualitative study using a phenomenological approach.

Authors:  Marzieh Jahani Sayad Noveiri; Farshid Shamsaei; Masoud Khodaveisi; Zohreh Vanaki; Lily Tapak
Journal:  Can Oncol Nurs J       Date:  2021-07-01

4.  Concept d'adaptation chez les conjoints de femmes iraniennes atteintes du cancer du sein: étude qualitative basée sur une approche phénoménologique.

Authors:  Marzieh Jahani Sayad Noveiri; Farshid Shamsaei; Masoud Khodaveisi; Zohreh Vanaki; Lily Tapak
Journal:  Can Oncol Nurs J       Date:  2021-07-01

Review 5.  The role of volunteer services at cancer centers.

Authors:  Dawn A Marcus
Journal:  Curr Pain Headache Rep       Date:  2013-11

Review 6.  Unmet psychosocial needs in haematological cancer: a systematic review.

Authors:  B Swash; N Hulbert-Williams; R Bramwell
Journal:  Support Care Cancer       Date:  2014-01-25       Impact factor: 3.603

7.  Caregivers' information needs and their 'experiences of care' during treatment are associated with elevated anxiety and depression: a cross-sectional study of the caregivers of renal cancer survivors.

Authors:  Devesh V Oberoi; Vicki White; Michael Jefford; Graham G Giles; Damien Bolton; Ian Davis; Ingrid Winship; H Miles Prince; Jeremy Millar; Simon Harrison; Anne Kay; David Hill
Journal:  Support Care Cancer       Date:  2016-05-05       Impact factor: 3.603

8.  "Home wasn't really home anymore": Understanding caregivers' perspectives of the impact of blood cancer caregiving on the family system.

Authors:  Carla L Fisher; Michaela D Mullis; Amanda Kastrinos; Easton Wollney; Elisa S Weiss; Maria Sae-Hau; Carma L Bylund
Journal:  Support Care Cancer       Date:  2020-10-13       Impact factor: 3.603

9.  A survey of the supportive care needs of informal caregivers of adult bone marrow transplant patients.

Authors:  J Armoogum; A Richardson; J Armes
Journal:  Support Care Cancer       Date:  2012-10-20       Impact factor: 3.603

10.  Informational needs of brain metastases patients and their caregivers.

Authors:  Janet Papadakos; Arnav Agarwal; Rebecca Charow; Naa Kwarley Quartey; Anna D'souza; Meredith Giuliani; Barbara-Ann Millar; Christine Massey; David Shultz; Caroline Chung
Journal:  Neurooncol Pract       Date:  2018-04-20
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