Literature DB >> 12787167

Toward assessing family outcomes of service delivery: validation of a family quality of life survey.

J Park1, L Hoffman, J Marquis, A P Turnbull, D Poston, H Mannan, M Wang, L L Nelson.   

Abstract

BACKGROUND: The concept of family quality of life (QoL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The present study describes the process of developing a tool to measure family QoL. METHODS AND
RESULTS: A total of 1197 respondents participated in a national field test. Through factor analysis, the survey was refined in several ways: (1) the preliminary 10-domain structure was reduced to a five-domain structure; (2) a total of 41 items were selected for the revised survey; and (3) wordings were clarified.
CONCLUSIONS: The implications for future research and practice are discussed.

Entities:  

Mesh:

Year:  2003        PMID: 12787167     DOI: 10.1046/j.1365-2788.2003.00497.x

Source DB:  PubMed          Journal:  J Intellect Disabil Res        ISSN: 0964-2633


  23 in total

1.  Family quality of life in dementia: a qualitative approach to family-identified care priorities.

Authors:  Jamie K Ducharme; David S Geldmacher
Journal:  Qual Life Res       Date:  2011-01-30       Impact factor: 4.147

2.  Is a family equal to the sum of its parts? Estimating family-level well-being for cost-effectiveness analysis.

Authors:  Amy E Bonomi; Denise M Boudreau; Paul A Fishman; Richard T Meenan; Dennis A Revicki
Journal:  Qual Life Res       Date:  2005-05       Impact factor: 4.147

3.  Evaluating the use of exploratory factor analysis in developmental disability psychological research.

Authors:  Megan Norris; Luc Lecavalier
Journal:  J Autism Dev Disord       Date:  2009-07-17

4.  Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder.

Authors:  Liezl Schlebusch; Shakila Dada; Alecia E Samuels
Journal:  J Autism Dev Disord       Date:  2017-07

5.  Emotional Disclosure Through Journal Writing: Telehealth Intervention for Maternal Stress and Mother-Child Relationships.

Authors:  Rondalyn V Whitney; Gigi Smith
Journal:  J Autism Dev Disord       Date:  2015-11

6.  Assessment of patient and caregiver needs in fragile X-associated tremor/ataxia syndrome by utilizing Q-sort methodology.

Authors:  Louise W Gane; Ana-Maria Iosif; Linda Flynn-Wilson; Marielle Venturino; Randi J Hagerman; Andreea L Seritan
Journal:  Aging Ment Health       Date:  2010-11       Impact factor: 3.658

7.  Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability.

Authors:  Xianmei Lei; Jiří Kantor
Journal:  Int J Dev Disabil       Date:  2020-08-12

8.  Family quality of life: perceptions of parents of children with developmental disabilities in Bosnia and Herzegovina.

Authors:  Alma Dizdarevic; Haris Memisevic; Armin Osmanovic; Amila Mujezinovic
Journal:  Int J Dev Disabil       Date:  2020-04-23

9.  Development and psychometric evaluation of a psychosocial quality-of-life questionnaire for individuals with autism and related developmental disorders.

Authors:  Leslie A Markowitz; Charina Reyes; Rebecca A Embacher; Leslie L Speer; Nancy Roizen; Thomas W Frazier
Journal:  Autism       Date:  2015-12-10

10.  Examining a stepped-care telehealth program for parents of young children with autism: a proof-of-concept trial.

Authors:  Allison L Wainer; Zachary E Arnold; Caroline Leonczyk; Latha Valluripalli Soorya
Journal:  Mol Autism       Date:  2021-05-08       Impact factor: 7.509

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