Literature DB >> 12693521

"What are they going to do with the information?" Latino/Latina and African American perspectives on the Human Genome Project.

Amy Schulz1, Cleopatra Caldwell, Sarah Foster.   

Abstract

New developments in genetic science raise questions regarding their application and implications. Dialogue about these questions has not often included the perspectives of the general population and, in particular, the voices of labeled racial or ethnic groups. In this article, the authors present results from an analysis of data from focus group discussions that engaged African Americans and Latinos/Latinas in a discussion of genetic research and technology. In particular, the authors focus on questions of inequality that arose in those focus groups and their implications for public health professionals interested in addressing pervasive racial disparities in health. In addition, they present strategies for achieving a more equitable distribution of risks and benefits from genetic research and technology suggested by participants in these focus groups.

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach; Genetics and Reproduction

Mesh:

Year:  2003        PMID: 12693521     DOI: 10.1177/1090198102251026

Source DB:  PubMed          Journal:  Health Educ Behav        ISSN: 1090-1981


  27 in total

1.  "Mama just won't accept this": adult perspectives on engaging depressed African American teens in clinical research and treatment.

Authors:  Alfiee M Breland-Noble; Carl C Bell; Antoinette Burriss
Journal:  J Clin Psychol Med Settings       Date:  2011-09

2.  Considerations in the construction of an instrument to assess attitudes regarding critical illness gene variation research.

Authors:  Bradley D Freeman; Carie R Kennedy; Dragana Bolcic-Jankovic; Alexander Eastman; Ellen Iverson; Erica Shehane; Aaron Celious; Jennifer Barillas; Brian Clarridge
Journal:  J Empir Res Hum Res Ethics       Date:  2012-02       Impact factor: 1.742

Review 3.  Public willingness to participate in and public opinions about genetic variation research: a review of the literature.

Authors:  Rene Sterling; Gail E Henderson; Giselle Corbie-Smith
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

4.  Public perspectives on returning genetics and genomics research results.

Authors:  J O'Daniel; S B Haga
Journal:  Public Health Genomics       Date:  2011-05-07       Impact factor: 2.000

5.  Ethical concerns around use of artificial intelligence in health care research from the perspective of patients with meningioma, caregivers and health care providers: a qualitative study.

Authors:  Melissa D McCradden; Ami Baba; Ashirbani Saha; Sidra Ahmad; Kanwar Boparai; Pantea Fadaiefard; Michael D Cusimano
Journal:  CMAJ Open       Date:  2020-02-18

6.  Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research.

Authors:  Kathleen A Culhane-Pera; MaiKia Moua; Pachia Vue; Kang Xiaaj; May Xia Lo; Robert J Straka
Journal:  J Community Genet       Date:  2016-11-07

7.  Inclusion of diverse populations in genomic research and health services: Genomix workshop report.

Authors:  Savio S Mathew; Julian Barwell; Nasaim Khan; Ella Lynch; Michael Parker; Nadeem Qureshi
Journal:  J Community Genet       Date:  2017-07-28

8.  Understanding participation by African Americans in cancer genetics research.

Authors:  Jasmine A McDonald; Frances K Barg; Benita Weathers; Carmen E Guerra; Andrea B Troxel; Susan Domchek; Deborah Bowen; Judy A Shea; Chanita Hughes Halbert
Journal:  J Natl Med Assoc       Date:  2012 Jul-Aug       Impact factor: 1.798

9.  An exploration of attitudes among black Americans towards psychiatric genetic research.

Authors:  Eleanor Murphy; Azure Thompson
Journal:  Psychiatry       Date:  2009       Impact factor: 2.458

10.  Why African Americans say "No": A Study of Pharmacogenomic Research Participation.

Authors:  Mohammed Nooruddin; Courtney Scherr; Paula Friedman; Ramesh Subrahmanyam; Jeff Banagan; Diana Moreno; Myurani Sathyanarayanan; Edith Nutescu; Tharani Jeyaram; Mary Harris; Honghong Zhang; Adriana Rodriguez; Mohammed Shaazuddin; Minoli Perera; Matthew Tuck
Journal:  Ethn Dis       Date:  2020-04-02       Impact factor: 1.847

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