Literature DB >> 12609302

Stigma and epilepsy.

Martha J. Morrell1.   

Abstract

For individuals with epilepsy in the United States and other countries, stigma can be one of the most distressing consequences of having seizures, along with the unpredictability of future seizures and the inability to drive. The impact of stigma on the lives of epilepsy patients is far reaching, frequently including effects on interpersonal relationships, general health, employment opportunities, and overall quality of life. Education about epilepsy directed at the broader community, as well as at the individual with epilepsy, is the most effective means of addressing misperceptions and fear. Epilepsy advocacy organizations, such as the Epilepsy Foundation, are important allies in this effort.

Entities:  

Year:  2002        PMID: 12609302     DOI: 10.1016/s1525-5050(02)00547-4

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  10 in total

Review 1.  Ethical, legal, and social dimensions of epilepsy genetics.

Authors:  Sara Shostak; Ruth Ottman
Journal:  Epilepsia       Date:  2006-10       Impact factor: 5.864

Review 2.  Consciousness of seizures and consciousness during seizures: are they related?

Authors:  Kamil Detyniecki; Hal Blumenfeld
Journal:  Epilepsy Behav       Date:  2013-10-12       Impact factor: 2.937

Review 3.  Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.

Authors:  Dale C Hesdorffer; Vicki Beck; Charles E Begley; Malachy L Bishop; Sandra Cushner-Weinstein; Gregory L Holmes; Patricia O Shafer; Joseph I Sirven; Joan K Austin
Journal:  Epilepsia       Date:  2013-01-07       Impact factor: 5.864

Review 4.  Epilepsy and the consciousness system: transient vegetative state?

Authors:  Hal Blumenfeld
Journal:  Neurol Clin       Date:  2011-11       Impact factor: 3.806

5.  Epilepsy-associated stigma in Zambia: what factors predict greater felt stigma in a highly stigmatized population?

Authors:  Masharip Atadzhanov; Alan Haworth; Elwyn N Chomba; Edward K Mbewe; Gretchen Lano Birbeck
Journal:  Epilepsy Behav       Date:  2010-09-17       Impact factor: 2.937

6.  Development and validation of the Kilifi Stigma Scale for Epilepsy in Kenya.

Authors:  Caroline K Mbuba; Amina Abubakar; Peter Odermatt; Charles R Newton; Julie A Carter
Journal:  Epilepsy Behav       Date:  2012-04-04       Impact factor: 2.937

7.  " Blaming, shaming, humiliation": Stigmatising medical interactions among people with non-epileptic seizures.

Authors:  Catherine Robson; Olaug S Lian
Journal:  Wellcome Open Res       Date:  2017-10-24

8.  The Health Stigma and Discrimination Framework: a global, crosscutting framework to inform research, intervention development, and policy on health-related stigmas.

Authors:  Anne L Stangl; Valerie A Earnshaw; Carmen H Logie; Wim van Brakel; Leickness C Simbayi; Iman Barré; John F Dovidio
Journal:  BMC Med       Date:  2019-02-15       Impact factor: 8.775

9.  Development and validation of the Epilepsy Self-Stigma Scale.

Authors:  Izumi Kuramochi; Takayuki Iwayama; Naoshi Horikawa; Sakie Shimotsu; Satsuki Watanabe; Hideo Yamanouchi; Haruo Yoshimasu
Journal:  Epilepsia Open       Date:  2021-10-26

10.  Barriers and facilitators to implementation of epilepsy self-management programs: a systematic review using qualitative evidence synthesis methods.

Authors:  Allison A Lewinski; Abigail Shapiro; Jennifer M Gierisch; Karen M Goldstein; Dan V Blalock; Matthew W Luedke; Adelaide M Gordon; Hayden B Bosworth; Connor Drake; Jeffrey D Lewis; Saurabh R Sinha; Aatif M Husain; Tung T Tran; Megan G Van Noord; John W Williams
Journal:  Syst Rev       Date:  2020-04-25
  10 in total

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