Literature DB >> 12564263

"This is a Spiritual Experience": perspectives of Latter-Day Saint families living with a child with disabilities.

Elaine Sorensen Marshall1, Susanne Frost Olsen, Barbara L Mandleco, Tina Taylor Dyches, Keith W Allred, Nancy Sansom.   

Abstract

The presence of a child with disabilities elicits a variety of stress demands on the family. Religion is recognized as a powerful personal, family, and cultural variable. However, little is known about the influence of religion in dealing with disability among families within particular religious groups. This descriptive study explored themes of spiritual belief and religious support among families of the Church of Jesus Christ of Latter-Day Saints (LDS, or Mormon) with a child with developmental disabilities. Parents shared perspectives of meaning that emerged from experiences with religion and family beliefs perceived to be unique. The core theme, "This is a Spiritual Experience," provides the foundation for a descriptive model that depicts aspects of finding meaning and perceived transcendence.

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Year:  2003        PMID: 12564263     DOI: 10.1177/1049732302239411

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  4 in total

1.  "A remarkable experience of god, shaping us as a family": parents' use of faith following child's rare disease diagnosis.

Authors:  Hillary N Purcell; Allison Whisenhunt; Joy Cheng; Sophia Dimitriou; Lisa R Young; Daniel H Grossoehme
Journal:  J Health Care Chaplain       Date:  2015

2.  We can handle this: parents' use of religion in the first year following their child's diagnosis with cystic fibrosis.

Authors:  Daniel H Grossoehme; Judy Ragsdale; Jamie L Wooldridge; Sian Cotton; Michael Seid
Journal:  J Health Care Chaplain       Date:  2010

3.  Family Sense-Making After a Down Syndrome Diagnosis.

Authors:  Lauren Clark; Heather E Canary; Kyle McDougle; Rebekah Perkins; Ruth Tadesse; Avery E Holton
Journal:  Qual Health Res       Date:  2020-07-03

4.  Relationship of adherence determinants and parental spirituality in cystic fibrosis.

Authors:  Daniel H Grossoehme; Lisa Opipari-Arrigan; Rhonda VanDyke; Sophia Thurmond; Michael Seid
Journal:  Pediatr Pulmonol       Date:  2011-12-13
  4 in total

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