Literature DB >> 12525680

Genetic privacy.

Pamela Sankar1.   

Abstract

During the past 10 years, the number of genetic tests performed more than tripled, and public concern about genetic privacy emerged. The majority of states and the U.S. government have passed regulations protecting genetic information. However, research has shown that concerns about genetic privacy are disproportionate to known instances of information misuse. Beliefs in genetic determinacy explain some of the heightened concern about genetic privacy. Discussion of the debate over genetic testing within families illustrates the most recent response to genetic privacy concerns.

Keywords:  Genetics and Reproduction

Mesh:

Year:  2001        PMID: 12525680     DOI: 10.1146/annurev.med.54.101601.152131

Source DB:  PubMed          Journal:  Annu Rev Med        ISSN: 0066-4219            Impact factor:   13.739


  11 in total

Review 1.  Research issues in genetic testing of adolescents for obesity.

Authors:  Mary E Segal; Pamela Sankar; Danielle R Reed
Journal:  Nutr Rev       Date:  2004-08       Impact factor: 7.110

2.  Democracy and genetic privacy: the value of bodily integrity.

Authors:  Ludvig Beckman
Journal:  Med Health Care Philos       Date:  2005

Review 3.  Can you keep a (genetic) secret? The genetic privacy movement.

Authors:  Margaret Everett
Journal:  J Genet Couns       Date:  2004-08       Impact factor: 2.537

4.  Genetic 'risk carriers' and lifestyle 'risk takers'. Which risks deserve our legal protection in insurance?

Authors:  Ine Van Hoyweghen; Klasien Horstman; Rita Schepers
Journal:  Health Care Anal       Date:  2007-02-21

5.  Genetic Privacy, Disease Prevention, and the Principle of Rescue.

Authors:  Madison K Kilbride
Journal:  Hastings Cent Rep       Date:  2018-05       Impact factor: 2.683

6.  Comparing knowledge of beta-thalassemia in samples of Italians, Italian-Americans, and non-Italian-Americans.

Authors:  Christina Armeli; Steven J Robbins; Deborah Eunpu
Journal:  J Genet Couns       Date:  2005-10       Impact factor: 2.537

7.  Genetics and genetic counseling: recommendations for Alzheimer's disease, frontotemporal dementia, and Creutzfeldt-Jakob disease.

Authors:  Jennifer Williamson; Susan LaRusse
Journal:  Curr Neurol Neurosci Rep       Date:  2004-09       Impact factor: 5.081

8.  Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation? A survey of patients from the Ontario Familial Colon Cancer Registry.

Authors:  Kelly Kohut; Michael Manno; Steven Gallinger; Mary Jane Esplen
Journal:  J Med Genet       Date:  2007-06       Impact factor: 6.318

9.  Lay perceptions of predictive testing for diabetes based on DNA test results versus family history assessment: a focus group study.

Authors:  Miranda Wijdenes-Pijl; Wybo J Dondorp; Danielle Rm Timmermans; Martina C Cornel; Lidewij Henneman
Journal:  BMC Public Health       Date:  2011-07-05       Impact factor: 3.295

10.  Young Adults' Belief in Genetic Determinism, and Knowledge and Attitudes towards Modern Genetics and Genomics: The PUGGS Questionnaire.

Authors:  Rebecca Bruu Carver; Jérémy Castéra; Niklas Gericke; Neima Alice Menezes Evangelista; Charbel N El-Hani
Journal:  PLoS One       Date:  2017-01-23       Impact factor: 3.240

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