Literature DB >> 12390226

A service users' research advisory group from the perspectives of both service users and researchers.

Penny Rhodes1, Andrew Nocon, Michael Booth, M Y Chowdrey, Anne Fabian, Neville Lambert, Faqir Mohammed, Teresa Walgrove.   

Abstract

Much has been written about the importance of involving service users in the research process. Far less is available about the experience of involvement from the perspective of service users themselves. The present paper is a joint account by service users and researchers of a service users' advisory group set up to support and advise a project to evaluate diabetes services in Bradford, UK. The establishment of a separate advisory group for service users is, to our knowledge, an innovative approach to lay involvement within mainstream National Health Service (NHS)-based research. Factors that contributed to the group's success included personal contact, continuity of membership and integration into the management structure of the project. Also valued were the confidence in numbers which membership of the group gave, and the opportunity to meet and discuss issues away from the formal and somewhat intimidating atmosphere of the project's steering group. Aside from the personal value to participants and any impact on the quality of research outcomes, wider benefits included the ability to share knowledge with others and gain greater intercultural understanding.

Entities:  

Mesh:

Year:  2002        PMID: 12390226     DOI: 10.1046/j.1365-2524.2002.00376.x

Source DB:  PubMed          Journal:  Health Soc Care Community        ISSN: 0966-0410


  18 in total

Review 1.  Mapping the impact of patient and public involvement on health and social care research: a systematic review.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Health Expect       Date:  2012-07-19       Impact factor: 3.377

2.  Involving consumers successfully in NHS research: a national survey.

Authors:  Rosemary Barber; Jonathan D Boote; Cindy L Cooper
Journal:  Health Expect       Date:  2007-12       Impact factor: 3.377

Review 3.  A systematic review of the impact of patient and public involvement on service users, researchers and communities.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Patient       Date:  2014       Impact factor: 3.883

4.  Health researchers' attitudes towards public involvement in health research.

Authors:  Jill Thompson; Rosemary Barber; Paul R Ward; Jonathan D Boote; Cindy L Cooper; Christopher J Armitage; Georgina Jones
Journal:  Health Expect       Date:  2009-04-22       Impact factor: 3.377

5.  Developing and evaluating a model of public involvement and engagement embedded in a national longitudinal study: HealthWise Wales.

Authors:  Julia Townson; Jan Davies; Lisa Hurt; Pauline Ashfield-Watt; Shantini Paranjothy
Journal:  Int J Popul Data Sci       Date:  2020-04-16

6.  Involving older people in a multi-centre randomised trial of a complex intervention in pre-hospital emergency care: implementation of a collaborative model.

Authors:  Marina Koniotou; Bridie Angela Evans; Robin Chatters; Rachael Fothergill; Christopher Garnsworthy; Sarah Gaze; Mary Halter; Suzanne Mason; Julie Peconi; Alison Porter; A Niroshan Siriwardena; Alun Toghill; Helen Snooks
Journal:  Trials       Date:  2015-07-10       Impact factor: 2.279

7.  Towards meeting the research needs of Australian cancer consumers.

Authors:  Carla Saunders; Sally Crossing
Journal:  BMC Res Notes       Date:  2012-12-03

Review 8.  A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory.

Authors:  Edel Tierney; Rachel McEvoy; Mary O'Reilly-de Brún; Tomas de Brún; Ekaterina Okonkwo; Michelle Rooney; Chris Dowrick; Anne Rogers; Anne MacFarlane
Journal:  Health Expect       Date:  2014-07-24       Impact factor: 3.377

9.  "Hitting the spot": Developing individuals with lived-experience of health and social care as facilitators to deliver a course to enhance public involvement in research - a Welsh perspective.

Authors:  Alan Meudell; Sian Jones; Natalie Simon; Zoe Hunter; Barbara Moore; Jim Elliott; Dawn Casey
Journal:  Res Involv Engagem       Date:  2017-04-04

Review 10.  Preparing for patient partnership: A scoping review of patient partner engagement and evaluation in research.

Authors:  Marissa Bird; Carley Ouellette; Carly Whitmore; Lin Li; Kalpana Nair; Michael H McGillion; Jennifer Yost; Laura Banfield; Elaine Campbell; Sandra L Carroll
Journal:  Health Expect       Date:  2020-03-10       Impact factor: 3.377

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