Literature DB >> 12271258

Palliative care research: methodological and ethical challenges.

Ruth A Dean1, Susan E McClement.   

Abstract

Nursing research in palliative care has, to date, been limited. As palliative care is increasingly recognized as a nursing specialty area, it requires the scientific foundation that research provides. Palliative care clients are particularly vulnerable because of the intensity of their illnesses and the emotional impact of impending death. This article identifies and discusses ethical and methodological challenges faced by those conducting research with this population. Suggestions for strategies that may help researchers meet these challenges are included.

Mesh:

Year:  2002        PMID: 12271258     DOI: 10.12968/ijpn.2002.8.8.10681

Source DB:  PubMed          Journal:  Int J Palliat Nurs        ISSN: 1357-6321


  12 in total

1.  Factors associated with attrition from a randomized controlled trial of meaning-centered group psychotherapy for patients with advanced cancer.

Authors:  Allison J Applebaum; Wendy G Lichtenthal; Hayley A Pessin; Julia N Radomski; N Simay Gökbayrak; Aviva M Katz; Barry Rosenfeld; William Breitbart
Journal:  Psychooncology       Date:  2011-07-12       Impact factor: 3.894

2.  Conducting research with end-of-life populations: overcoming recruitment challenges when working with clinical agencies.

Authors:  Dena J Fischer; Sandy C Burgener; Karen Kavanaugh; Catherine Ryan; Gail Keenan
Journal:  Appl Nurs Res       Date:  2011-06-22       Impact factor: 2.257

3.  Association between the Development of Hospice and Palliative Care and Government-Funded Research Priority: Taiwan-Based Example.

Authors:  Ming-Chieh Cho; Po-Chin Yang; Yueh-Hsin Wang; Hsiao-Ting Chang; Ming-Hwai Lin
Journal:  Healthcare (Basel)       Date:  2022-06-16

4.  Content validity and electronic PRO (ePRO) usability of the Lung Cancer Symptom Scale-Mesothelioma (LCSS-Meso) in mesothelioma patients.

Authors:  Heather L Gelhorn; Anne M Skalicky; Zaneta Balantac; Sonya Eremenco; Tricia Cimms; Katarina Halling; Patricia J Hollen; Richard J Gralla; Martin C Mahoney; Chris Sexton
Journal:  Support Care Cancer       Date:  2018-02-01       Impact factor: 3.603

5.  A proposed systems approach to the evaluation of integrated palliative care.

Authors:  Daryl Bainbridge; Kevin Brazil; Paul Krueger; Jenny Ploeg; Alan Taniguchi
Journal:  BMC Palliat Care       Date:  2010-05-10       Impact factor: 3.234

6.  Patient perspectives on participation in the ENABLE II randomized controlled trial of a concurrent oncology palliative care intervention: benefits and burdens.

Authors:  Cristine Maloney; Kathleen Doyle Lyons; Zhongze Li; Mark Hegel; Tim A Ahles; Marie Bakitas
Journal:  Palliat Med       Date:  2012-05-09       Impact factor: 4.762

7.  The project ENABLE II randomized controlled trial to improve palliative care for rural patients with advanced cancer: baseline findings, methodological challenges, and solutions.

Authors:  Marie Bakitas; Kathleen Doyle Lyons; Mark T Hegel; Stefan Balan; Kathleen N Barnett; Frances C Brokaw; Ira R Byock; Jay G Hull; Zhongze Li; Elizabeth McKinstry; Janette L Seville; Tim A Ahles
Journal:  Palliat Support Care       Date:  2009-03

8.  Proxy perspectives regarding end-of-life care for persons with cancer.

Authors:  Marie Bakitas; Tim A Ahles; Karen Skalla; Frances C Brokaw; Ira Byock; Brett Hanscom; Kathleen Doyle Lyons; Mark T Hegel
Journal:  Cancer       Date:  2008-04-15       Impact factor: 6.860

9.  Measuring positive psychosocial sequelae in patients with advanced cancer.

Authors:  Allison J Applebaum; Allison Marziliano; Elizabeth Schofield; William Breitbart; Barry Rosenfeld
Journal:  Psychol Trauma       Date:  2020-09-03

10.  Factors affecting recruitment to an observational multicentre palliative care study.

Authors:  Patrick C Stone; Bridget Gwilliam; Vaughan Keeley; Chris Todd; Laura C Kelly; Stephen Barclay
Journal:  BMJ Support Palliat Care       Date:  2013-01-07       Impact factor: 3.568

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