Literature DB >> 12242882

Major study commencing into genetic discrimination in Australia.

Margaret F Otlowski1, Sandra D Taylor, Kristine K Barlow-Stewart.   

Abstract

This article describes a nationwide empirical study that will be undertaken during the next three years into the newly emerging phenomenon of genetic discrimination. In particular, the study aims to investigate the nature and extent of genetic discrimination in Australia across three key perspectives: consumers, third parties and the legal system. Further, the study aims to examine the social and legal implications of genetic discrimination, with a view to making recommendations for use in the Australian legal and policy context. It is anticipated that the data produced from this multifaceted investigation will assist in identifying areas where legal or other reforms are required. It will contribute significant baseline data for facilitating ongoing assessment of the nature and extent of the problem, as well as for longitudinal evaluation of the impact and effectiveness of any reforms which may be introduced in the future to address the issue.

Mesh:

Year:  2002        PMID: 12242882

Source DB:  PubMed          Journal:  J Law Med        ISSN: 1320-159X


  6 in total

1.  Exploring the concept of genetic discrimination.

Authors:  Margaret Otlowski
Journal:  J Bioeth Inq       Date:  2005       Impact factor: 1.352

2.  Analysis of the Reasons for Non-Uptake of Predictive Testing for Huntington's Disease in Spain: A Qualitative Study.

Authors:  Jesús Rivera-Navarro; Esther Cubo; Natividad Mariscal
Journal:  J Genet Couns       Date:  2015-04-30       Impact factor: 2.537

3.  Psychodynamic theory and counseling in predictive testing for Huntington's disease.

Authors:  Roslyn J Tassicker
Journal:  J Genet Couns       Date:  2005-04       Impact factor: 2.537

4.  Perception, experience, and response to genetic discrimination in Huntington's disease: the Australian results of The International RESPOND-HD study.

Authors:  Anita M Y Goh; Edmond Chiu; Olga Yastrubetskaya; Cheryl Erwin; Janet K Williams; Andrew R Juhl; Jane S Paulsen
Journal:  Genet Test Mol Biomarkers       Date:  2013-01-04

5.  Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease.

Authors:  Elizabeth Penziner; Janet K Williams; Cheryl Erwin; Yvonne Bombard; Anne Wallis; Leigh J Beglinger; Michael R Hayden; Jane S Paulsen
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2008-04-05       Impact factor: 3.568

6.  Study protocol: the Australian genetics and life insurance moratorium-monitoring the effectiveness and response (A-GLIMMER) project.

Authors:  Louise Keogh; Paul Lacaze; Jane Tiller; Aideen McInerney-Leo; Andrea Belcher; Tiffany Boughtwood; Penny Gleeson; Martin Delatycki; Kristine Barlow-Stewart; Ingrid Winship; Margaret Otlowski
Journal:  BMC Med Ethics       Date:  2021-05-21       Impact factor: 2.652

  6 in total

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