Literature DB >> 12180516

Genetic research and the vulnerability of Native Hawaiians.

R M Chang1, P H Lowenthal.   

Abstract

Traditional research ethics are unable to provide adequate protections for human subjects involved in research--much less genetic research. New principles need to be developed to change the paradigm and put human research subjects in a more equitable relationship with their researchers. In addition, new laws should be crafted to level the playing field for human research participants. Humans can no longer look at themselves as hereditary beings, but as stewards of intra- and inter-generational genetic material in need of protection. Recommendations are provided.

Entities:  

Mesh:

Year:  2001        PMID: 12180516

Source DB:  PubMed          Journal:  Pac Health Dialog        ISSN: 1015-7867


  10 in total

Review 1.  An Integrative Review of the Barriers to Indigenous Peoples Participation in Biobanking and Genomic Research.

Authors:  Jaclyn Aramoana; Jonathan Koea
Journal:  J Glob Oncol       Date:  2019-03

2.  Insights in Public Health: Hana Pu No Ke Ola O Hana ("Working Together for the Health of Hana"): Our 14-year CBPR Journey.

Authors:  May Vawer; Rick Rutiz; Viliami Tukuafu; Kirsten Whatley; Kauwila Hanchett; Lipoa Kahaleuahi; Lehualani Park; Mikala Minn; Beth Blackburn; Malia Young; Ann Muneno; Deborah A Taira; Tetine Sentell; Todd B Seto
Journal:  Hawaii J Med Public Health       Date:  2019-03

Review 3.  An Integrative Review of the Barriers to Indigenous Peoples Participation in Biobanking and Genomic Research.

Authors:  Jaclyn Aramoana; Jonathan Koea
Journal:  JCO Glob Oncol       Date:  2019-03-07

Review 4.  An Integrative Review of the Barriers to Indigenous Peoples Participation in Biobanking and Genomic Research.

Authors:  Jaclyn Aramoana; Jonathan Koea
Journal:  J Glob Oncol       Date:  2019-03-07

5.  Engaging Pacific Islanders in Research: Community Recommendations.

Authors:  Jane J Chung-Do; Mele A Look; Tricia Mabellos; Mililani Trask-Batti; Katherine Burke; Marjorie K L Mala Mau
Journal:  Prog Community Health Partnersh       Date:  2016

6.  Na Liko Noelo: a program to develop Native Hawaiian researchers.

Authors:  JoAnn 'Umilani Tsark; Kathryn L Braun
Journal:  Pac Health Dialog       Date:  2004-09

7.  Genetic research in native communities.

Authors:  Lorrieann Santos
Journal:  Prog Community Health Partnersh       Date:  2008

8.  Navigating the cultural geography of indigenous peoples' attitude toward genetic research: the Ohana (family) heart project.

Authors:  May Vawer; Patsy Kaina; Ann Leonard; Michael Ogata; Beth Blackburn; Malia Young; Todd B Seto
Journal:  Int J Circumpolar Health       Date:  2013-08-05       Impact factor: 1.228

9.  Community-Based Participatory Research Integrates Behavioral and Biological Research to Achieve Health Equity for Native Hawaiians.

Authors:  Claire K M Townsend; Adrienne Dillard; Kelsea K Hosoda; Gregory G Maskarinec; Alika K Maunakea; Sheryl R Yoshimura; Claire Hughes; Donna-Marie Palakiko; Bridget Puni Kehauoha; Joseph Keawe'aimoku Kaholokula
Journal:  Int J Environ Res Public Health       Date:  2015-12-22       Impact factor: 3.390

Review 10.  An Integrative Review of the Barriers to Indigenous Peoples Participation in Biobanking and Genomic Research.

Authors:  Jaclyn Aramoana; Jonathan Koea
Journal:  JCO Glob Oncol       Date:  2020-03
  10 in total

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