Literature DB >> 11703495

Development and implementation of a science training course for breast cancer activists: Project LEAD (leadership, education and advocacy development).

K Dickersin1, L Braun, M Mead, R Millikan, A M Wu, J Pietenpol, S Troyan, B Anderson, F Visco.   

Abstract

OBJECTIVE: To develop and implement Project LEAD (leadership, education, and advocacy development), a science course for breast cancer activists. POPULATION: Students were breast cancer activists and other consumers, mainly affiliated with advocacy organizations in the United States of America.
SETTING: Project LEAD is offered by the National Breast Cancer Coalition; the course takes place over 5 days and is offered 4 times a year, in various cities in the United States of America.
RESULTS: The Project LEAD curriculum has developed over 5 years to include lectures, problem-based study groups, case studies, interactive critical appraisal sessions, a seminar by an 'expert' scientist, role play, and homework components. A core faculty has been valuable for evaluating and revising the course and has proved necessary to provide consistent high quality teaching. Course evaluations indicated that students gained critical appraisal skills, enhanced their knowledge and developed confidence in selected areas of basic science and epidemiology.
CONCLUSIONS: Project LEAD comprises a unique curriculum for training breast cancer activists in science and critical appraisal. Course evaluations indicate that students gain confidence and skills from the course.

Entities:  

Mesh:

Year:  2001        PMID: 11703495      PMCID: PMC5060083          DOI: 10.1046/j.1369-6513.2001.00153.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  6 in total

1.  NIH invites activists into the inner sanctum.

Authors:  B Agnew
Journal:  Science       Date:  1999-03-26       Impact factor: 47.728

2.  Patient advocates help researchers avoid "bumps in the road".

Authors:  C Vanchieri
Journal:  J Natl Cancer Inst       Date:  1998-08-19       Impact factor: 13.506

3.  Effect of psychosocial treatment on survival of patients with metastatic breast cancer.

Authors:  D Spiegel; J R Bloom; H C Kraemer; E Gottheil
Journal:  Lancet       Date:  1989-10-14       Impact factor: 79.321

4.  The politics of breast cancer.

Authors:  E Marshall
Journal:  Science       Date:  1993-01-29       Impact factor: 47.728

5.  US Army to use peer review in breast cancer programme.

Authors:  J Mervis
Journal:  Nature       Date:  1993-05-20       Impact factor: 49.962

6.  Breast cancer activists seek voice in research decisions.

Authors:  J Erikson
Journal:  Science       Date:  1995-09-15       Impact factor: 47.728

  6 in total
  15 in total

1.  The cycle of bias in health research: a framework and toolbox for critical appraisal training.

Authors:  Donna H Odierna; Susan R Forsyth; Jenny White; Lisa A Bero
Journal:  Account Res       Date:  2013       Impact factor: 2.622

2.  The Cochrane Library review titles that are important to users of health care, a Cochrane Consumer Network project.

Authors:  Janet L Wale; María Belizán; Jane Nadel; Claire Jeffrey; Sita L Vij
Journal:  Health Expect       Date:  2011-09-06       Impact factor: 3.377

3.  Critical appraisal training increases understanding and confidence and enhances the use of evidence in diverse categories of learners.

Authors:  Donna H Odierna; Jenny White; Susan Forsyth; Lisa A Bero
Journal:  Health Expect       Date:  2012-12-16       Impact factor: 3.377

4.  Training of patient and consumer representatives in the basic competencies of evidence-based medicine: a feasibility study.

Authors:  Bettina Berger; Anke Steckelberg; Gabriele Meyer; Jürgen Kasper; Ingrid Mühlhauser
Journal:  BMC Med Educ       Date:  2010-02-11       Impact factor: 2.463

5.  PartecipaSalute, an Italian project to involve lay people, patients' associations and scientific-medical representatives in the health debate.

Authors:  Paola Mosconi; Cinzia Colombo; Roberto Satolli; Alessandro Liberati
Journal:  Health Expect       Date:  2007-06       Impact factor: 3.377

6.  Does a consumer training work? a follow-up survey of the PartecipaSalute training programs.

Authors:  Paola Mosconi; Roberto Satolli; Cinzia Colombo; Walter Villani
Journal:  Health Res Policy Syst       Date:  2012-09-01

7.  Development of a complex intervention to improve health literacy skills.

Authors:  Astrid Austvoll-Dahlgren; Stein Danielsen; Elin Opheim; Arild Bjørndal; Liv Merete Reinar; Signe Flottorp; Andrew David Oxman; Sølvi Helseth
Journal:  Health Info Libr J       Date:  2013-07-31

Review 8.  Interventions and assessment tools addressing key concepts people need to know to appraise claims about treatment effects: a systematic mapping review.

Authors:  Astrid Austvoll-Dahlgren; Allen Nsangi; Daniel Semakula
Journal:  Syst Rev       Date:  2016-12-29

9.  SUPPORT Tools for evidence-informed health Policymaking (STP) 2: Improving how your organisation supports the use of research evidence to inform policymaking.

Authors:  Andrew D Oxman; Per Olav Vandvik; John N Lavis; Atle Fretheim; Simon Lewin
Journal:  Health Res Policy Syst       Date:  2009-12-16

10.  From inclusion to independence--training consumers to review research.

Authors:  Carla Saunders; Afaf Girgis; Phyllis Butow; Sally Crossing; Andrew Penman
Journal:  Health Res Policy Syst       Date:  2008-03-09
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