Literature DB >> 11372189

Uncertainty in childhood illness: a synthesis of the parent and child literature.

J L Stewart1, M H Mishel.   

Abstract

Uncertainty has increasingly been identified as an important construct in the clinical and empirical literature on families' responses to serious childhood illnesses. Most of the work has focused on parents' perceptions of uncertainty, but several recent studies have demonstrated that children are also affected by uncertainties inherent in the illness experience. Findings from 44 reports of parental uncertainty and 12 reports of children's uncertainty were reviewed to determine what is currently known about uncertainty in the context of acute and chronic childhood illness. Pertinent conceptual and methodological issues are identified and directions for future research are suggested.

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Mesh:

Year:  2000        PMID: 11372189

Source DB:  PubMed          Journal:  Sch Inq Nurs Pract        ISSN: 0889-7182


  26 in total

1.  The family impacts of proton radiation therapy for children with brain tumors.

Authors:  Amy J Houtrow; Torunn I Yock; Jennifer Delahaye; Karen Kuhlthau
Journal:  J Pediatr Oncol Nurs       Date:  2012 May-Jun       Impact factor: 1.636

2.  Effects of Time since Diagnosis on the Association between Parent and Child Distress in Families with Pediatric Cancer.

Authors:  Yuko Okado; Rachel Tillery; Katianne Howard Sharp; Alanna M Long; Sean Phipps
Journal:  Child Health Care       Date:  2015-03-12

3.  Association between parent and child distress and the moderating effects of life events in families with and without a history of pediatric cancer.

Authors:  Yuko Okado; Alanna M Long; Sean Phipps
Journal:  J Pediatr Psychol       Date:  2014-07-25

4.  Parent Preferences for Shared Decision-making in Acute Versus Chronic Illness.

Authors:  Dina M Tom; Christian Aquino; Anthony R Arredondo; Byron A Foster
Journal:  Hosp Pediatr       Date:  2017-10

5.  Factors Associated with Parental Adaptation to Children with an Undiagnosed Medical Condition.

Authors:  Tatiane Yanes; Linda Humphreys; Aideen McInerney-Leo; Barbara Biesecker
Journal:  J Genet Couns       Date:  2016-12-30       Impact factor: 2.537

Review 6.  Meta-Analysis: Caregiver and Youth Uncertainty in Pediatric Chronic Illness.

Authors:  Lauren Szulczewski; Larry L Mullins; Sarah L Bidwell; Angelica R Eddington; Ahna L H Pai
Journal:  J Pediatr Psychol       Date:  2017-05-01

7.  A clinic-based interdisciplinary intervention for mothers of children newly diagnosed with cancer: a pilot study.

Authors:  Larry L Mullins; David A Fedele; Mark Chaffin; Stephanie E Hullmann; Carol Kenner; Angelica R Eddington; Sean Phipps; Rene Y McNall-Knapp
Journal:  J Pediatr Psychol       Date:  2012-09-03

8.  Association between informal caregiving and cellular aging in the survey of the health of wisconsin: the role of caregiving characteristics, stress, and strain.

Authors:  Kristin Litzelman; Whitney P Witt; Ronald E Gangnon; F Javier Nieto; Corinne D Engelman; Marsha R Mailick; Halcyon G Skinner
Journal:  Am J Epidemiol       Date:  2014-04-29       Impact factor: 4.897

9.  Uncertainty, hope, and coping efficacy among mothers of children with Duchenne/Becker muscular dystrophy.

Authors:  Megan Bell; Barbara B Biesecker; Joann Bodurtha; Holly L Peay
Journal:  Clin Genet       Date:  2019-04-03       Impact factor: 4.438

10.  Receiving enzyme replacement therapy for a lysosomal storage disorder: a preliminary exploration of the experiences of young patients and their families.

Authors:  R Freedman; M Sahhar; L Curnow; J Lee; H Peters
Journal:  J Genet Couns       Date:  2013-03-28       Impact factor: 2.537

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