Literature DB >> 11204678

Cleft lip and palate care in the United Kingdom--the Clinical Standards Advisory Group (CSAG) Study. Part 2: dentofacial outcomes and patient satisfaction.

A C Williams1, D Bearn, S Mildinhall, T Murphy, D Sell, W C Shaw, J J Murray, J R Sandy.   

Abstract

OBJECTIVE: To describe facial development and appearance, quality of bone grafts, oral health, and patient/parent satisfaction, with clinical outcome, for children in two age cohorts born with unilateral cleft lip and palate (UCLP) throughout the United Kingdom.
DESIGN: Cross-sectional outcome study.
SETTING: Fifty National Health Service cleft centers. PARTICIPANTS: Children born with complete UCLP between April 1, 1982, and March 31, 1984, (12-year-olds) and April 1, 1989, and March 31, 1991 (5-year-olds). Data were collected for 239 5-year-olds and 218 12-year-olds. The parents of these children were also interviewed to determine levels of satisfaction with care received. MAIN OUTCOME MEASURES: Skeletal pattern, dental arch relationship, success of alveolar bone grafting, facial appearance, oral health status, and patient/parent satisfaction.
RESULTS: Nearly 40% of 5- and 12-year-olds had poor dental arch relations, and 70% of 12-year-olds had midface retrusion. Fifteen percent of 12-year-olds had not received an alveolar bone graft, and only 58% of bone grafts that had been undertaken were successful. Twenty percent of 12-year-olds and 40% of 5-year-olds had untreated dental caries. Less than one-third of subjects had a good facial appearance as judged by a panel of experts. Levels of patient and parent satisfaction were generally high.
CONCLUSION: A rigorous evaluation of cleft care in the United Kingdom reveals disappointing outcomes.

Entities:  

Mesh:

Year:  2001        PMID: 11204678     DOI: 10.1597/1545-1569_2001_038_0024_clapci_2.0.co_2

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  25 in total

1.  Long-term stability of maxillary protraction therapy in Class III patients with complete unilateral cleft lip and palate.

Authors:  Yixin Zhang; Zhen Fu; Haichao Jia; Yiping Huang; Xiaobei Li; Hao Liu; Weiran Li
Journal:  Angle Orthod       Date:  2018-11-28       Impact factor: 2.079

2.  Dental Decay Phenotype in Nonsyndromic Orofacial Clefting.

Authors:  B J Howe; M E Cooper; G L Wehby; J M Resick; N L Nidey; L C Valencia-Ramirez; A M Lopez-Palacio; D Rivera; A R Vieira; S M Weinberg; M L Marazita; L M Moreno Uribe
Journal:  J Dent Res       Date:  2017-05-23       Impact factor: 6.116

3.  Alveolar bone grafting: results of a national outcome study.

Authors:  Peter J Revington; Clare McNamara; Shumaila Mukarram; Esther Perera; Hemendranath V Shah; Scott A Deacon
Journal:  Ann R Coll Surg Engl       Date:  2010-07-02       Impact factor: 1.891

4.  An investigation into infant feeding in children born with a cleft lip and/or palate in the West of Scotland.

Authors:  K F M Britton; S H McDonald; R R Welbury
Journal:  Eur Arch Paediatr Dent       Date:  2011-10

5.  Rehabilitative treatment of cleft lip and palate: experience of the Hospital for Rehabilitation of Craniofacial Anomalies-USP (HRAC-USP)--part 3: oral and maxillofacial surgery.

Authors:  José Alberto de Souza Freitas; Daniela Gamba Garib; Ivy Kiemle Trindade-Suedam; Roberta Martinelli Carvalho; Thais Marchini Oliveira; Rita de Cássia Moura Carvalho Lauris; Ana Lúcia Pompéia Fraga de Almeida; Lucimara Teixeira das Neves; Renato Yassutaka Faria Yaedú; Simone Soares; Reinaldo Mazzottini; João Henrique Nogueira Pinto
Journal:  J Appl Oral Sci       Date:  2012 Nov-Dec       Impact factor: 2.698

6.  An Evaluation of Health-Related Quality of Life (HRQoL) in a group of 4-7 year-old children with cleft lip and palate.

Authors:  Darius Sagheri; Ulrike Ravens-Sieberer; Bert Braumann; Sylvia von Mackensen
Journal:  J Orofac Orthop       Date:  2009-08-02       Impact factor: 1.938

7.  Facilitators and Barriers to Implementing Standardized Outcome Measurement for Children With Cleft Lip and Palate.

Authors:  Erica M Weidler; Maria T Britto; Thomas J Sitzman
Journal:  Cleft Palate Craniofac J       Date:  2020-07-14

8.  Centralisation of services for children with cleft lip or palate in England: a study of hospital episode statistics.

Authors:  Kate J Fitzsimons; Shumaila Mukarram; Lynn P Copley; Scott A Deacon; Jan H van der Meulen
Journal:  BMC Health Serv Res       Date:  2012-06-10       Impact factor: 2.655

9.  Nasomaxillary complex in size, position and orientation in surgically treated and untreated individuals with cleft lip and palate: A cephalometric overview.

Authors:  Rohit Khanna; Tripti Tikku; Jitesh Wadhwa
Journal:  Indian J Plast Surg       Date:  2012-01

10.  External frame distraction osteogenesis of the midface in the cleft patient.

Authors:  Syed Altaf Hussain
Journal:  Indian J Plast Surg       Date:  2009-10
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