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Authors: Chiara Baldo; Lorena Casareto; Alessandra Renieri; Giuseppe Merla; Barbara Garavaglia; Stefano Goldwurm; Elena Pegoraro; Maurizio Moggio; Marina Mora; Luisa Politano; Luca Sangiorgi; Raffaella Mazzotti; Valeria Viotti; Ilaria Meloni; Maria Teresa Pellico; Chiara Barzaghi; Chiuhui Mary Wang; Lucia Monaco; Mirella Filocamo
Journal: Orphanet J Rare Dis Date: 2016-10-24 Impact factor: 4.123

Hugo ethics committee statement on benefit sharing: April 9, 2000.

Review 1. What Do the Various Principles of Justice Mean Within the Concept of Benefit Sharing?

2. Solidarity: a (new) ethic for global health policy.

3. Benefit sharing: it's time for a definition.

4. Global bioethics and communitarianism.

5. Protecting subjects' interests in genetics research.

6. The alliance between genetic biobanks and patient organisations: the experience of the telethon network of genetic biobanks.

7. Ethical frameworks for obtaining informed consent in tumour profiling: an evidence-based case for Singapore.

8. Germline genome editing: Moratorium, hard law, or an informed adaptive consensus?

9. Falling giants and the rise of gene editing: ethics, private interests and the public good.

Review 10. A scoping review of considerations and practices for benefit sharing in biobanking.