Literature DB >> 11066877

Genetic privacy and confidentiality: why they are so hard to protect.

M A Rothstein1.   

Abstract

Author notes that widespread concerns have been raised about protecting genetic privacy and confidentiality in insurance and employment. He argues that effective protections are difficult because complicated issues, such as the right of access to health care, are invariably implicated.

Keywords:  Americans with Disabilities Act 1990; Equal Employment Opportunity Commission; Genetics and Reproduction; Legal Approach; Professional Patient Relationship

Mesh:

Year:  1998        PMID: 11066877     DOI: 10.1111/j.1748-720x.1998.tb01420.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  5 in total

Review 1.  Confidence and conflicts of duty in surgery.

Authors:  John Coggon; Robert Wheeler
Journal:  Ann R Coll Surg Engl       Date:  2010-03       Impact factor: 1.891

2.  Is GINA worth the wait?

Authors:  Mark A Rothstein
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

3.  Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study.

Authors:  Cheryl Erwin; Janet K Williams; Andrew R Juhl; Michelle Mengeling; James A Mills; Yvonne Bombard; Michael R Hayden; Kimberly Quaid; Ira Shoulson; Sandra Taylor; Jane S Paulsen
Journal:  Am J Med Genet B Neuropsychiatr Genet       Date:  2010-07       Impact factor: 3.568

Review 4.  Evolving approaches to the ethical management of genomic data.

Authors:  Jean E McEwen; Joy T Boyer; Kathie Y Sun
Journal:  Trends Genet       Date:  2013-02-28       Impact factor: 11.639

5.  Legal update: living with the Genetic Information Nondiscrimination Act.

Authors:  Cheryl Erwin
Journal:  Genet Med       Date:  2008-12       Impact factor: 8.822

  5 in total

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