Literature DB >> 10900929

"I can speak for myself": involving individuals with intellectual disabilities as research participants.

J B Mactavish1, Z M Lutfiyya, M J Mahon.   

Abstract

The Lifespan and Disability Project, a 2-year qualitative study, was designed to enhance understanding of social integration by including the perspectives of individuals with intellectual disabilities. Procedures and strategies employed to involve these individuals in the project were documented. Specifically, we describe the use of individual interviews and focus groups (e.g., purpose, rationale, facilitation techniques) to collect data, and verification meetings in which a prompting hierarchy and cueing were employed to assist participants in confirming or disconfirming the researchers' interpretations of the emerging findings. Highlights of the results were presented to illustrate the efficacy of the strategies in enabling the participants with intellectual disabilities to share their perspectives on social integration.

Entities:  

Keywords:  Biomedical and Behavioral Research; Mental Health Therapies

Mesh:

Year:  2000        PMID: 10900929     DOI: 10.1352/0047-6765(2000)038<0216:ICSFMI>2.0.CO;2

Source DB:  PubMed          Journal:  Ment Retard        ISSN: 0047-6765


  4 in total

1.  Self-report computer-based survey of technology use by people with intellectual and developmental disabilities.

Authors:  Emily Shea Tanis; Susan Palmer; Michael Wehmeyer; Daniel K Davies; Steven E Stock; Kathy Lobb; Barbara Bishop
Journal:  Intellect Dev Disabil       Date:  2012-02

2.  Instrumentalist analyses of the functions of ethics concept-principles: a proposal for synergetic empirical and conceptual enrichment.

Authors:  Eric Racine; M Ariel Cascio; Marjorie Montreuil; Aline Bogossian
Journal:  Theor Med Bioeth       Date:  2019-08

3.  The Effectiveness of Aquatic Group Therapy for Improving Water Safety and Social Interactions in Children with Autism Spectrum Disorder: A Pilot Program.

Authors:  Michele L Alaniz; Sheila S Rosenberg; Nicole R Beard; Emily R Rosario
Journal:  J Autism Dev Disord       Date:  2017-12

4.  External sources promoting resilience in adults with intellectual disabilities: A systematic literature review.

Authors:  Femke Scheffers; Xavier Moonen; Eveline van Vugt
Journal:  J Intellect Disabil       Date:  2020-09-28
  4 in total

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