| Literature DB >> 10461598 |
R Schibeci1, I Barns, R Shaw, A Davison.
Abstract
This project tested a two-way model of communication between lay groups and experts about genetic medicine in Perth, Western Australia. Focus group discussion with community group participants was followed by a communication workshop between community group participants and experts. Four groups of concerns or themes emerged from discussion: clinical considerations; legislative concerns; research priorities, and ethical and wider considerations. Community group concerns are not always met by the actions of "experts". This is, in part, because of the differing life-worlds of each group. However, the communication workshop showed the potential of two-way communication for both lay and expert members in understanding the others' viewpoint. Further, the approach developed here offers one possible way for community groups to participate in a substantial way in policy formulation processes.Entities:
Keywords: Biomedical and Behavioral Research; Empirical Approach; Genetics and Reproduction; Perth
Mesh:
Year: 1999 PMID: 10461598 PMCID: PMC479244 DOI: 10.1136/jme.25.4.335
Source DB: PubMed Journal: J Med Ethics ISSN: 0306-6800 Impact factor: 2.903