Literature DB >> 10461598

Genetic medicine: an experiment in community-expert interaction.

R Schibeci1, I Barns, R Shaw, A Davison.   

Abstract

This project tested a two-way model of communication between lay groups and experts about genetic medicine in Perth, Western Australia. Focus group discussion with community group participants was followed by a communication workshop between community group participants and experts. Four groups of concerns or themes emerged from discussion: clinical considerations; legislative concerns; research priorities, and ethical and wider considerations. Community group concerns are not always met by the actions of "experts". This is, in part, because of the differing life-worlds of each group. However, the communication workshop showed the potential of two-way communication for both lay and expert members in understanding the others' viewpoint. Further, the approach developed here offers one possible way for community groups to participate in a substantial way in policy formulation processes.

Entities:  

Keywords:  Biomedical and Behavioral Research; Empirical Approach; Genetics and Reproduction; Perth

Mesh:

Year:  1999        PMID: 10461598      PMCID: PMC479244          DOI: 10.1136/jme.25.4.335

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  2 in total

1.  Genetics services in a social, ethical and policy context: a collaboration between consumers and providers.

Authors:  D C Wertz; R Gregg
Journal:  J Med Ethics       Date:  2000-08       Impact factor: 2.903

2.  Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions.

Authors:  Sarah E Gollust; Kira Apse; Barbara P Fuller; Paul Steven Miller; Barbara B Biesecker
Journal:  Am J Public Health       Date:  2005-01       Impact factor: 9.308

  2 in total

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