OBJECTIVE: General health-related quality-of-life (HRQoL) surveys have not been well tested in populations with spinal cord injury (SCI). This study evaluated the performance of 5 such instruments. DESIGN: A cross-sectional survey with instruments administered in random order during computer-assisted interviews. SETTING: A midwestern US veteran SCI program. SUBJECTS: One hundred eighty-three veterans with SCI ranging in age from 21 to 81 yrs (mean = 50.5). MEASURES: The Behavioral Risk Factor Surveillance System (BRFSS) HRQoL modules, the Quality of Well-Being scale (QWB), the Medical Outcomes Study Short-Form 36 and Short-Form 12 (SF-36, SF-12), and instrumental activities of daily living (IADL). RESULTS: Construct validity was supported by scores from the QWB, IADL, and physical health measures of the BRFSS and SF-36 showing greater impairment for quadriplegia than paraplegia. Similar constructs on the SF-36 and BRFSS were more strongly correlated than between the IADL and QWB; eg, correlation between the SF-36 Vitality scale and the BRFSS "Days full of energy" question was r = .789 (p < .01), whereas correlation between the IADL and QWB was r = -.454 (p < .01). Longer surveys (SF-36, QWB) were rated lower in subject acceptability. CONCLUSIONS: These instruments have potential for research use among patients with SCI. More studies are needed to explore the best use of instruments with apparently different domains.
OBJECTIVE: General health-related quality-of-life (HRQoL) surveys have not been well tested in populations with spinal cord injury (SCI). This study evaluated the performance of 5 such instruments. DESIGN: A cross-sectional survey with instruments administered in random order during computer-assisted interviews. SETTING: A midwestern US veteran SCI program. SUBJECTS: One hundred eighty-three veterans with SCI ranging in age from 21 to 81 yrs (mean = 50.5). MEASURES: The Behavioral Risk Factor Surveillance System (BRFSS) HRQoL modules, the Quality of Well-Being scale (QWB), the Medical Outcomes Study Short-Form 36 and Short-Form 12 (SF-36, SF-12), and instrumental activities of daily living (IADL). RESULTS: Construct validity was supported by scores from the QWB, IADL, and physical health measures of the BRFSS and SF-36 showing greater impairment for quadriplegia than paraplegia. Similar constructs on the SF-36 and BRFSS were more strongly correlated than between the IADL and QWB; eg, correlation between the SF-36 Vitality scale and the BRFSS "Days full of energy" question was r = .789 (p < .01), whereas correlation between the IADL and QWB was r = -.454 (p < .01). Longer surveys (SF-36, QWB) were rated lower in subject acceptability. CONCLUSIONS: These instruments have potential for research use among patients with SCI. More studies are needed to explore the best use of instruments with apparently different domains.
Authors: Willi Horner-Johnson; Rie Suzuki; Gloria L Krahn; Elena M Andresen; Charles E Drum Journal: Qual Life Res Date: 2010-05-14 Impact factor: 4.147
Authors: Farshad Nassiri; Benjamin Price; Ameer Shehab; Karolyn Au; Michael D Cusimano; Michael D Jenkinson; Christine Jungk; Alireza Mansouri; Thomas Santarius; Suganth Suppiah; Ken X Teng; Gurvinder S Toor; Gelareh Zadeh; Tobias Walbert; Katharine J Drummond Journal: Neuro Oncol Date: 2019-01-14 Impact factor: 12.300