Literature DB >> 10448174

Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal unit policies in Europe.

M Cuttini1, M Rebagliato, P Bortoli, G Hansen, R de Leeuw, S Lenoir, J Persson, M Reid, M Schroell, U de Vonderweid, M Kaminski, H Lenard, M Orzalesi, R Saracci.   

Abstract

AIM: To compare neonatal intensive care unit policies towards parents' visiting, information, and participation in ethical decisions across eight European countries.
METHODS: One hundred and twenty three units, selected by random or exhaustive sampling, were recruited, with an overall response rate of 87%.
RESULTS: Proportions of units allowing unrestricted parental visiting ranged from 11% in Spain to 100% in Great Britain, Luxembourg and Sweden, and those explicitly involving parents in decisions from 19% in Italy to 89% in Great Britain. Policies concerning information also varied.
CONCLUSIONS: These variations cannot be explained by differences in unit characteristics, such as level, size, and availability of resources. As the importance of parental participation in the care of their babies is increasingly being recognised, these findings have implications for neonatal intensive care organisation and policy.

Keywords:  Empirical Approach; Professional Patient Relationship

Mesh:

Year:  1999        PMID: 10448174      PMCID: PMC1720990          DOI: 10.1136/fn.81.2.f84

Source DB:  PubMed          Journal:  Arch Dis Child Fetal Neonatal Ed        ISSN: 1359-2998            Impact factor:   5.747


  34 in total

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Journal:  Pediatrics       Date:  1978-08       Impact factor: 7.124

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  19 in total

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Authors:  D E da Costa; H Ghazal; Saleh Al Khusaiby
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2002-03       Impact factor: 5.747

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Authors:  R Bramwell; M Weindling
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2005-09       Impact factor: 5.747

3.  Consultation of parents in actual end-of-life decision-making in neonates and infants.

Authors:  Veerle Provoost; Filip Cools; Peter Deconinck; José Ramet; Reginald Deschepper; Johan Bilsen; Freddy Mortier; Yvan Vandenplas; Luc Deliens
Journal:  Eur J Pediatr       Date:  2006-06-28       Impact factor: 3.183

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Authors:  Donal Manning
Journal:  Health Care Anal       Date:  2005-03

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Authors:  B S Brinchmann; P Nortvedt
Journal:  Med Health Care Philos       Date:  2001

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Authors:  Kristina Orfali; Elisa J Gordon
Journal:  Theor Med Bioeth       Date:  2004

7.  Visiting policies in Italian intensive care units: a nationwide survey.

Authors:  Alberto Giannini; Guido Miccinesi; Stefania Leoncino
Journal:  Intensive Care Med       Date:  2008-02-23       Impact factor: 17.440

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Authors:  R J Boyle; R Salter; M W Arnander
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9.  Should euthanasia be legal? An international survey of neonatal intensive care units staff.

Authors:  M Cuttini; V Casotto; M Kaminski; I de Beaufort; I Berbik; G Hansen; L Kollée; A Kucinskas; S Lenoir; A Levin; M Orzalesi; J Persson; M Rebagliato; M Reid; R Saracci
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2004-01       Impact factor: 5.747

10.  Characterising doctor-parent communication in counselling for impending preterm delivery.

Authors:  J A F Zupancic; H Kirpalani; J Barrett; S Stewart; A Gafni; D Streiner; M L Beecroft; P Smith
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2002-09       Impact factor: 5.747

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