Literature DB >> 9851665

Service provision for patients with ALS/MND: a cost-effective multidisciplinary approach.

B Corr1, E Frost, B J Traynor, O Hardiman.   

Abstract

Optimal management of patients with ALS/MND requires a team approach, with early referral to paramedical services for clinical assessment and prompt intervention. As the condition progresses, a flexible approach to management must be adopted by the medical team, with an ability to intervene at very short notice. We have developed an efficient multi-disciplinary clinic that services the ALS/MND population of Ireland by combining the existing infrastructure of community services with a hospital-based specialist clinic. The clinic operates on a weekly basis, and is staffed by a core team including a neurologist, a liaison nurse, and the director of the ALS/MND Association. On-site and same-day physiotherapy, occupational therapy and speech therapy is available, as is pulmonary evaluation. All patients utilising the clinical services are automatically included on the Irish Register of Motor Neurone Disease, and are tracked by the liaison nurse. The core members of the clinic interact regularly with paramedical staff within the community, ensuring that necessary community services are made available within 1-2 weeks of the clinic visit. Equipment necessary for the patient's well being is made available free of charge by the Irish Motor Neurone Disease Association, following an appropriate request from the regional para-medical staff. We have thus demonstrated that an effective multi- disciplinary care service for ALS/MND can be developed at modest cost by close personal liaison between the existing health care structures and core members of a multidisciplinary team.

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Year:  1998        PMID: 9851665     DOI: 10.1016/s0022-510x(98)00214-7

Source DB:  PubMed          Journal:  J Neurol Sci        ISSN: 0022-510X            Impact factor:   3.181


  5 in total

1.  Effect of a multidisciplinary amyotrophic lateral sclerosis (ALS) clinic on ALS survival: a population based study, 1996-2000.

Authors:  B J Traynor; M Alexander; B Corr; E Frost; O Hardiman
Journal:  J Neurol Neurosurg Psychiatry       Date:  2003-09       Impact factor: 10.154

Review 2.  Developing multidisciplinary clinics for neuromuscular care and research.

Authors:  Sabrina Paganoni; Katie Nicholson; Fawn Leigh; Kathryn Swoboda; David Chad; Kristin Drake; Kellen Haley; Merit Cudkowicz; James D Berry
Journal:  Muscle Nerve       Date:  2017-08-29       Impact factor: 3.217

3.  What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives.

Authors:  Anne Hogden; David Greenfield; Peter Nugus; Matthew C Kiernan
Journal:  Patient Prefer Adherence       Date:  2012-11-27       Impact factor: 2.711

4.  Identification and outcomes of clinical phenotypes in amyotrophic lateral sclerosis/motor neuron disease: Australian National Motor Neuron Disease observational cohort.

Authors:  Paul Talman; Thi Duong; Steve Vucic; Susan Mathers; Svetha Venkatesh; Robert Henderson; Dominic Rowe; David Schultz; Robert Edis; Merrilee Needham; Richard Macdonnell; Pamela McCombe; Carol Birks; Matthew Kiernan
Journal:  BMJ Open       Date:  2016-09-30       Impact factor: 2.692

Review 5.  Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach.

Authors:  Anne Hogden; Geraldine Foley; Robert D Henderson; Natalie James; Samar M Aoun
Journal:  J Multidiscip Healthc       Date:  2017-05-19
  5 in total

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