Literature DB >> 9832897

The autonomy paradox: predictive genetic testing and autonomy: three essential problems.

A K Huibers1, A van 't Spijker.   

Abstract

The development of genetics creates the possibility to acquire more and more information concerning our genetic constitution. In general this is considered as a contribution to the autonomy of patients and others. In this article it is pointed out that the relation between genetic information and autonomy is far from simple. The autonomy of people may even be threatened by genetic information. Counsellors should therefore be very careful in offering the opportunity of genetic testing; a general policy of restraint would be advisable. And when offering information, several considerations should be kept in mind in order to avoid doing more harm than good in the counseling process.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  1998        PMID: 9832897     DOI: 10.1016/s0738-3991(98)00083-4

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  5 in total

1.  Public perceptions of ethical issues regarding adult predictive genetic testing.

Authors:  Douglas K Martin; Heather L Greenwood; Jeff Nisker
Journal:  Health Care Anal       Date:  2009-03-14

2.  Professional ambivalence: accounts of ethical practice in childhood genetic testing.

Authors:  Michael Arribas-Ayllon; Srikant Sarangi; Angus Clarke
Journal:  J Genet Couns       Date:  2009-02-10       Impact factor: 2.537

3.  Direct-to-consumer genomics on the scales of autonomy.

Authors:  Effy Vayena
Journal:  J Med Ethics       Date:  2014-05-05       Impact factor: 2.903

4.  The use of heuristics in genetic testing decision-making: A qualitative interview study.

Authors:  Bettina Maria Zimmermann; David Martin Shaw; Bernice Elger; Insa Koné
Journal:  PLoS One       Date:  2021-11-30       Impact factor: 3.240

5.  Are good intentions good enough? Informed consent without trained interpreters.

Authors:  Linda M Hunt; Katherine B de Voogd
Journal:  J Gen Intern Med       Date:  2007-03-02       Impact factor: 5.128

  5 in total

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