OBJECTIVE: Investigate the hypothesis that family competence in addressing challenges associated with sickle cell disease (SCD) contributes to adolescents' adjustment. METHOD: During routine clinic appointments, 80 adolescents (M age = 14.4 years) and their parents independently completed the Self-Report Family Inventory (SFI), which assesses family competence, and measures of adolescent adjustment problems. Information related to disease severity was obtained from clinic files. RESULTS: Regression analyses controlling for demographic and medical variables revealed that higher family competence was associated with fewer internalizing and externalizing behaviors by the adolescent; these relations were particularly true for younger adolescents and for girls. Parental reports of somatic complaints in girls were predicted by parental ratings of family competence. DISCUSSION: Interventions for adolescents with SCD should be family-centered and should focus on strengthening the family's ability to manage stressors associated with parenting an adolescent with a chronic illness.
OBJECTIVE: Investigate the hypothesis that family competence in addressing challenges associated with sickle cell disease (SCD) contributes to adolescents' adjustment. METHOD: During routine clinic appointments, 80 adolescents (M age = 14.4 years) and their parents independently completed the Self-Report Family Inventory (SFI), which assesses family competence, and measures of adolescent adjustment problems. Information related to disease severity was obtained from clinic files. RESULTS: Regression analyses controlling for demographic and medical variables revealed that higher family competence was associated with fewer internalizing and externalizing behaviors by the adolescent; these relations were particularly true for younger adolescents and for girls. Parental reports of somatic complaints in girls were predicted by parental ratings of family competence. DISCUSSION: Interventions for adolescents with SCD should be family-centered and should focus on strengthening the family's ability to manage stressors associated with parenting an adolescent with a chronic illness.
Authors: Xu Zhang; Kiarri N Kershaw; Caterina P Minniti; Andrew Campbell; Sohail R Rana; Deepika S Darbari; Lori Luchtman-Jones; Craig Sable; Niti Dham; Gregory Ensing; Manuel Arteta; James G Taylor; Lewis L Hsu; Sergei Nekhai; Victor R Gordeuk Journal: Blood Adv Date: 2020-07-28
Authors: Brian H Wrotniak; Joan I Schall; Megan E Brault; Dorene F Balmer; Virginia A Stallings Journal: J Pediatr Health Care Date: 2012-11-08 Impact factor: 1.812
Authors: Badr M Madani; Rajaa Al Raddadi; Soad Al Jaouni; Mohab Omer; Marie-Isabelle Al Awa Journal: Health Qual Life Outcomes Date: 2018-09-10 Impact factor: 3.186