Literature DB >> 9699452

Exploring the lived-experience of childhood cancer survivors.

V E Karian1, S M Jankowski, J A Beal.   

Abstract

The purpose of this qualitative phenomenological study was to explore the lived-experience of childhood cancer survivors with regard to their patterns of interaction with family and the environment using Newman's theory of Health as Expanding Consciousness, which proposes that experiencing a devastating event promotes an expanded consciousness. The sample consisted of five young adults, ages 23 to 26 years, who had experienced childhood cancer and now are considered to be cured of their initial cancer. A hermeneutic dialectic approach was used, with each subject being asked to respond to one open-ended question, "What are the most meaningful events in your life?" The interviews were analyzed for evidence of expanded consciousness, changing relatedness, and other universal themes. Individual patterns emerged and themes were identified that supported Newman's theory, such as optimism and hope, stronger bonds to family and friends, increased capacity for empathy, a desire to help others, and deeper feelings for the value of life. The intensely personal and professional relationship that develops between pediatric oncology nurses and their patients can only be strengthened by the knowledge that these patients generally grew up to be caring and empathetic individuals, perhaps as a result of the nurses' loving care for them. This research also provided support for Newman's theory as a sound paradigm for nursing practice.

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Year:  1998        PMID: 9699452     DOI: 10.1177/104345429801500304

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  7 in total

1.  Exploring concerns of children with cancer.

Authors:  Karen Moody; Marc Meyer; Carol A Mancuso; Mary Charlson; Laura Robbins
Journal:  Support Care Cancer       Date:  2006-04-26       Impact factor: 3.603

2.  The meaning of surviving cancer for Latino adolescents and emerging young adults.

Authors:  Barbara L Jones; Deborah L Volker; Yolanda Vinajeras; Linda Butros; Cynthia Fitchpatrick; Kelly Rossetto
Journal:  Cancer Nurs       Date:  2010 Jan-Feb       Impact factor: 2.592

3.  Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words.

Authors:  Alex W K Wong; Ting-Ting Chang; Katrina Christopher; Stephen C L Lau; Lynda K Beaupin; Brad Love; Kim L Lipsey; Michael Feuerstein
Journal:  J Cancer Surviv       Date:  2017-03-29       Impact factor: 4.442

4.  Acceptability of the Schedule for the Evaluation of Individual Quality of Life-Direct Weight (SEIQoL-DW) in youth with type 1 diabetes.

Authors:  Julie Wagner
Journal:  Qual Life Res       Date:  2004-09       Impact factor: 4.147

5.  Cancer during adolescence: negative and positive consequences reported three and four years after diagnosis.

Authors:  Gunn Engvall; Martin Cernvall; Gunnel Larsson; Louise von Essen; Elisabet Mattsson
Journal:  PLoS One       Date:  2011-12-14       Impact factor: 3.240

6.  The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer.

Authors:  Mahnaz Shoghi; Bahareh Shahbazi; Naimeh Seyedfatemi
Journal:  Asian Pac J Cancer Prev       Date:  2019-06-01

7.  Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden.

Authors:  Vicky Lehmann; Helena Grönqvist; Gunn Engvall; Malin Ander; Marrit A Tuinman; Mariët Hagedoorn; Robbert Sanderman; Elisabet Mattsson; Louise von Essen
Journal:  Psychooncology       Date:  2014-04-15       Impact factor: 3.894

  7 in total

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