Caregiver burden and coping strategies used by informal caregivers of minority women living with HIV/AIDS.

The incidence of HIV/AIDS among minority women has been reported in record numbers in inner cities. In considering the shift toward community-based care, these minority women living with HIV/AIDS (MWLWHA) are receiving care from informal caregivers in their communities. As caregivers strive to meet the needs of these women, understanding the impact on these caregivers of providing support is critical. In this qualitative study, caregiver burden and coping strategies used by informal caregivers of minority women living with HIV/AIDS were studied. Thirty-one caregivers were interviewed. Data analyses included the constant comparative method consistent with the grounded theory approach. Two caregiver groups emerged, male companion and relative/girlfriend caregivers. All caregivers reported the emotional burden of not revealing the HIV/AIDS diagnoses. Relative/girlfriend caregivers had similar burdens related to the children of the women; their social networks, health and finances. Maintaining a physical exercise regimen and a spiritual focus were coping strategies use by all caregivers. Implications and recommendations are discussed.