Literature DB >> 9668558

Psychosocial integration of adolescents and young adults with thalassemia major.

A Di Palma1, C Vullo, B Zani, A Facchini.   

Abstract

UNLABELLED: The aim of this study was to explore the effect of thalassemia major on the psychosocial adjustment of adolescents and young adults.
DESIGN: unmarried adolescent and young adult patients were asked to fill in an ad hoc questionnaire; a semi-structured interview exploring marriage and family life was done with married patients. SAMPLE: group A: 90 unmarried patients, 50% females and 50% males, aged 14-22 years. The control group was formed by 100 matched subjects; group B: 19 thalassemic married subjects, 6 males and 13 females, aged 28-45 years, 7 patients had children and 12 did not.
RESULTS: group A: subjects with thalassemia had normal psychological and social development and scored better than their normal peers in tests investigating social adjustment, self-esteem and self-description. Moreover the family relationships of adolescents with thalassemia appeared to be stronger than those reported by normal controls; group B: the behavior of thalassemic couples did not differ from the one observed in non-thalassemic couples in the course of previous investigations.
CONCLUSIONS: Our data shows that neither thalassemic adolescents nor thalassemic married, well-treated, young adults differ significantly from the healthy young people in their ability to cope with life's difficulties both in adolescence and marital life.

Entities:  

Mesh:

Year:  1998        PMID: 9668558     DOI: 10.1111/j.1749-6632.1998.tb10493.x

Source DB:  PubMed          Journal:  Ann N Y Acad Sci        ISSN: 0077-8923            Impact factor:   5.691


  7 in total

1.  Psychometric properties of the Specific Thalassemia Quality of Life Instrument for adults.

Authors:  Georgios N Lyrakos; Demetra Vini; Helen Aslani; Marouso Drosou-Servou
Journal:  Patient Prefer Adherence       Date:  2012-07-02       Impact factor: 2.711

2.  Psychological Aspects in Children and Adolescents With Major Thalassemia: A Case-Control Study.

Authors:  Fatemeh Behdani; Zahra Badiee; Paria Hebrani; Fatemeh Moharreri; Amir Hossein Badiee; Negin Hajivosugh; Zohreh Rostami; Amir Akhavanrezayat
Journal:  Iran J Pediatr       Date:  2015-06-27       Impact factor: 0.364

3.  Changes in the quality of life of people with thalassemia major between 2001 and 2009.

Authors:  Giorgia Gollo; Gaia Savioli; Manuela Balocco; Cristina Venturino; Elio Boeri; Massimo Costantini; Gian Luca Forni
Journal:  Patient Prefer Adherence       Date:  2013-03-20       Impact factor: 2.711

4.  Life Satisfaction in children and adolescents with beta thalassemia major in southwest Iran.

Authors:  Gissou Hatami; Niloofar Motamed
Journal:  Electron Physician       Date:  2014-02-01

5.  Development and Validation of a Multidimensional Expectation Questionnaire for Thalassaemia Major Patients.

Authors:  Ioannis G Koutelekos; Helen Kyritsi; Alexandros Makis; Constantine M Vassalos; Eftychios Ktenas; Maria Polikandrioti; Chryssa Tzoumaka-Bakoula; Nikolaos Chaliasos
Journal:  Glob J Health Sci       Date:  2015-06-08

6.  Development of the Thalassaemia Adult Life Index (ThALI).

Authors:  Xenya Kantaris; Mark Shevlin; John Porter; Lynn Myers
Journal:  Health Qual Life Outcomes       Date:  2020-06-12       Impact factor: 3.186

7.  Quality of life among adolescents aged 14 to 18 years with Beta-Thalassemia Major (TM) in Qatar.

Authors:  Abdulqadir J Nashwan; Mohamed A Yassin; Ganga Devi J Babu; Sindhumole L K Nair; Izette L Libo-On; Hothaifah A Hijazi; Vincenzo De Sanctis; Ashraf Soliman
Journal:  Acta Biomed       Date:  2018-02-16
  7 in total

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