OBJECTIVES: The prevalence and characteristics of fetal alcohol syndrome cases and the usefulness of various data sources in surveillance were examined in Alaska to guide prevention and future surveillance efforts. METHODS: Sixteen data sources in Alaska were used to identify children with fetal alcohol syndrome. Medical charts were reviewed to verify cases, and records were reviewed to provide descriptive data. RESULTS: Fetal alcohol syndrome rates varied markedly by birth year and race, with the highest prevalence (4.1 per 1000 live births) found among Alaska Natives born between 1985 and 1988. Screening and referral programs to diagnostic clinics identified 70% of all recorded cases. The intervention program for children 0 to 3 years of age detected 29% of age-appropriate cases, and Medicaid data identified 11% of all cases; birth certificates detected only 9% of the age-appropriate cases. CONCLUSIONS: Our findings indicate a high prevalence of fetal alcohol syndrome in Alaska and illustrate that reliance on any one data source would lead to underestimates of the extent of fetal alcohol syndrome in a population.
OBJECTIVES: The prevalence and characteristics of fetal alcohol syndrome cases and the usefulness of various data sources in surveillance were examined in Alaska to guide prevention and future surveillance efforts. METHODS: Sixteen data sources in Alaska were used to identify children with fetal alcohol syndrome. Medical charts were reviewed to verify cases, and records were reviewed to provide descriptive data. RESULTS:Fetal alcohol syndrome rates varied markedly by birth year and race, with the highest prevalence (4.1 per 1000 live births) found among Alaska Natives born between 1985 and 1988. Screening and referral programs to diagnostic clinics identified 70% of all recorded cases. The intervention program for children 0 to 3 years of age detected 29% of age-appropriate cases, and Medicaid data identified 11% of all cases; birth certificates detected only 9% of the age-appropriate cases. CONCLUSIONS: Our findings indicate a high prevalence of fetal alcohol syndrome in Alaska and illustrate that reliance on any one data source would lead to underestimates of the extent of fetal alcohol syndrome in a population.
Authors: Philip A May; J Phillip Gossage; Anna-Susan Marais; Colleen M Adnams; H Eugene Hoyme; Kenneth L Jones; Luther K Robinson; Nathaniel C O Khaole; Cudore Snell; Wendy O Kalberg; Loretta Hendricks; Lesley Brooke; Chandra Stellavato; Denis L Viljoen Journal: Drug Alcohol Depend Date: 2006-11-28 Impact factor: 4.492
Authors: Denis L Viljoen; J Phillip Gossage; Lesley Brooke; Colleen M Adnams; Kenneth L Jones; Luther K Robinson; H Eugene Hoyme; Cudore Snell; Nathaniel C O Khaole; Piyadasa Kodituwakku; Kwadwo Ohene Asante; Richard Findlay; Barbara Quinton; Anna-Susan Marais; Wendy O Kalberg; Philip A May Journal: J Stud Alcohol Date: 2005-09
Authors: P A May; L Brooke; J P Gossage; J Croxford; C Adnams; K L Jones; L Robinson; D Viljoen Journal: Am J Public Health Date: 2000-12 Impact factor: 9.308
Authors: Grace M Egeland; Peter Berti; Rula Soueida; Laura T Arbour; Olivier Receveur; Harriet V Kuhnlein Journal: Can J Public Health Date: 2004 Nov-Dec
Authors: Philip A May; Daniela Fiorentino; Giovanna Coriale; Wendy O Kalberg; H Eugene Hoyme; Alfredo S Aragón; David Buckley; Chandra Stellavato; J Phillip Gossage; Luther K Robinson; Kenneth Lyons Jones; Melanie Manning; Mauro Ceccanti Journal: Int J Environ Res Public Health Date: 2011-06-22 Impact factor: 3.390