Literature DB >> 9550274

Sexuality and reproductive issues in children with myelomeningocele.

B D Joyner1, G A McLorie, A E Khoury.   

Abstract

Recent advancements in surgical and medical therapies have improved the life expectancy of children with myelomeningocele. Yet, there has been a contrasting lack of improvement with regards to sexual function and reproductive issues that continue to infantilize this population. This article identifies five major risk factors that contribute to these delays which invariably lead to irreversible emotional trauma if they are not addressed early in childhood. Adequate psychosexual education of myelomeningocele patients and their families is a tremendous societal challenge. But, only with education will there be trends away from policies of isolation to those that reinforce community integration of the physically disabled.

Entities:  

Keywords:  Age Factors; Behavior; Child; Demographic Factors; Economic Factors; Education; Handicapped; Health; Literature Review; Needs; Personality; Population; Population Characteristics; Psychological Factors; Reproductive Health; Sex Education; Sexuality; Youth

Mesh:

Year:  1998        PMID: 9550274     DOI: 10.1055/s-2008-1071115

Source DB:  PubMed          Journal:  Eur J Pediatr Surg        ISSN: 0939-7248            Impact factor:   2.191


  4 in total

1.  Sexuality issues in adolescents with a chronic neurological condition.

Authors:  Kathleen J Sawin; Constance F Buran; Timothy J Brei; Philip S Fastenau
Journal:  J Perinat Educ       Date:  2002

Review 2.  Urinary considerations for adult patients with spinal dysraphism.

Authors:  Paul W Veenboer; Laetitia M O de Kort; Rafal J Chrzan; Tom P V M de Jong
Journal:  Nat Rev Urol       Date:  2015-05-12       Impact factor: 14.432

3.  QUAlity of Life Assessment in Spina bifida for Adults (QUALAS-A): development and international validation of a novel health-related quality of life instrument.

Authors:  Konrad M Szymanski; Rosalia Misseri; Benjamin Whittam; Sonia-Maria Raposo; Shelly J King; Martin Kaefer; Richard C Rink; Mark P Cain
Journal:  Qual Life Res       Date:  2015-04-12       Impact factor: 4.147

Review 4.  Research Needs for Effective Transition in Lifelong Care of Congenital Genitourinary Conditions: A Workshop Sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases.

Authors:  Michael H Hsieh; Hadley M Wood; Brad E Dicianno; Nienke P Dosa; Veronica Gomez-Lobo; Tej K Mattoo; Rosalia Misseri; Jenna M Norton; Kathleen J Sawin; Peter Scal; James E Wright; Robert A Star; Tamara Bavendam
Journal:  Urology       Date:  2017-02-02       Impact factor: 2.649

  4 in total

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