Literature DB >> 9544440

Families' experiences of caring at home for a technology-dependent child: a review of the literature.

S Kirk1.   

Abstract

Recent medical advances have led to the emergence of a group of chronically ill children who are dependent upon technology for their survival. Many of these children are cared for at home by their parents. This paper presents an overview of the literature that has examined the experiences of families caring for a technology-dependent child at home. The social, emotional and financial impact on families and their perspectives on the services supporting them at home is described. The paper concludes by identifying areas where further research is needed.

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Year:  1998        PMID: 9544440     DOI: 10.1046/j.1365-2214.1998.00043.x

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  17 in total

Review 1.  The personal costs of caring for a child with a disability: a review of the literature.

Authors:  Donna Anderson; Serge Dumont; Philip Jacobs; Leila Azzaria
Journal:  Public Health Rep       Date:  2007 Jan-Feb       Impact factor: 2.792

Review 2.  Cost-effectiveness of neonatal surgery: first greeted with scepticism, now increasingly accepted.

Authors:  Marten J Poley; Werner B F Brouwer; Jan J V Busschbach; Frans W J Hazebroek; Dick Tibboel; Frans F H Rutten; Jan C Molenaar
Journal:  Pediatr Surg Int       Date:  2007-11-06       Impact factor: 1.827

3.  Sleeping problems in mothers and fathers of patients suffering from congenital central hypoventilation syndrome.

Authors:  Erika Maria Paddeu; Fiorenza Giganti; Raffaele Piumelli; Salvatore De Masi; Luca Filippi; Maria Pia Viggiano; Gianpaolo Donzelli
Journal:  Sleep Breath       Date:  2014-11-25       Impact factor: 2.816

4.  The relationship between home nursing coverage, sleep, and daytime functioning in parents of ventilator-assisted children.

Authors:  Lisa J Meltzer; Deborah S Boroughs; John J Downes
Journal:  J Pediatr Nurs       Date:  2009-04-03       Impact factor: 2.145

5.  Psychosocial Needs and Facilitators of Mothers Caring for Children with Duchenne/Becker Muscular Dystrophy.

Authors:  Holly L Peay; Bettina Meiser; Kathleen Kinnett; Aad Tibben
Journal:  J Genet Couns       Date:  2017-08-12       Impact factor: 2.537

6.  Social Isolation Among Families Caring for Children With Disabilities.

Authors:  Dennis J Baumgardner
Journal:  J Patient Cent Res Rev       Date:  2019-10-28

7.  Sleep Disturbance in Caregivers of Children With Respiratory and Atopic Disease.

Authors:  Lisa J Meltzer; Genery D Booster
Journal:  J Pediatr Psychol       Date:  2016-03-26

8.  Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives.

Authors:  Sarah A Sobotka; Ayesha Dholakia; Jay G Berry; Maria Brenner; Robert J Graham; Denise M Goodman; Rishi K Agrawal
Journal:  Pediatr Pulmonol       Date:  2020-10-06

9.  Experts' Perspectives Toward a Population Health Approach for Children With Medical Complexity.

Authors:  Elizabeth S Barnert; Ryan J Coller; Bergen B Nelson; Lindsey R Thompson; Vincent Chan; Cesar Padilla; Thomas S Klitzner; Moira Szilagyi; Paul J Chung
Journal:  Acad Pediatr       Date:  2017-02-27       Impact factor: 3.107

10.  A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system.

Authors:  Janneke Hatzmann; Heleen Maurice-Stam; Hugo S A Heymans; Martha A Grootenhuis
Journal:  Health Qual Life Outcomes       Date:  2009-07-28       Impact factor: 3.186

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