OBJECTIVE: To determine whether persons living with HIV find a disease-specific advance directive more acceptable than a generic directive. DESIGN: Randomized clinical trial. SETTING: HIV consumer organization and hospital-based HIV clinic. PARTICIPANTS: Volunteer sample of persons with HIV. INTERVENTIONS: The disease-specific HIV Living Will, the generic Centre for Bioethics Living Will, or both. MEASUREMENTS AND MAIN RESULTS: Of 101 participants who received both advance directives, 78 (77.2%) preferred the disease-specific HIV Living Will and 23 (22.8%) preferred the generic Centre for Bioethics Living Will (p < .001). Most participants who preferred the HIV Living Will did so because it was more specific or relevant to their situation. CONCLUSIONS:Persons living with HIV prefer a disease-specific to a generic advance directive. They should be offered a disease-specific advance directive. Our findings should also encourage investigators to develop and evaluate disease-specific advance directives in other clinical settings.
RCT Entities:
OBJECTIVE: To determine whether persons living with HIV find a disease-specific advance directive more acceptable than a generic directive. DESIGN: Randomized clinical trial. SETTING: HIV consumer organization and hospital-based HIV clinic. PARTICIPANTS: Volunteer sample of persons with HIV. INTERVENTIONS: The disease-specific HIV Living Will, the generic Centre for Bioethics Living Will, or both. MEASUREMENTS AND MAIN RESULTS: Of 101 participants who received both advance directives, 78 (77.2%) preferred the disease-specific HIV Living Will and 23 (22.8%) preferred the generic Centre for Bioethics Living Will (p < .001). Most participants who preferred the HIV Living Will did so because it was more specific or relevant to their situation. CONCLUSIONS:Persons living with HIV prefer a disease-specific to a generic advance directive. They should be offered a disease-specific advance directive. Our findings should also encourage investigators to develop and evaluate disease-specific advance directives in other clinical settings.
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Keywords:
Death and Euthanasia; Empirical Approach
Authors: P A Singer; E C Thiel; C D Naylor; R M Richardson; H Llewellyn-Thomas; M Goldstein; C Saiphoo; P R Uldall; D Kim; D C Mendelssohn Journal: J Am Soc Nephrol Date: 1995-11 Impact factor: 10.121
Authors: Molly A Feely; Daniel Hildebrandt; Jithinraj Edakkanambeth Varayil; Paul S Mueller Journal: Clin J Am Soc Nephrol Date: 2016-11-17 Impact factor: 8.237
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