Irritable bowel syndrome. An exploration of the patient perspective.

Although research into the etiology of irritable bowel syndrome (IBS) is extensive, this is not true for the patient experience of IBS. International population studies indicate that 15-20% of persons suffer from IBS. IBS is one of the eight most common somatic symptom complexes that account for 23% of visits to primary care physicians. This article details the journey of IBS sufferers in their attempt to understand and manage their illness through documenting patient perceptions of the origin of the illness, their search for treatment, their present management strategies, and their need for information and control. A grounded theory approach is used. Clinical practice protocols reflect the state of knowledge surrounding IBS: The variables are many and diagnosis and outcomes are uncertain. Further, our data suggest there is a desperate need for support groups and opportunities for patients, physicians, and supportive others to share experiences and concerns.