Literature DB >> 9176974

Matching the clinical function and symptom status with the expectations of patients with advanced cancer, their families, and health care workers.

H Neuenschwander1, E Bruera, F Cavalli.   

Abstract

Continuous accurate assessment is mandatory for palliative care of good quality. One of the major objectives in palliation is to meet the expectations of patient, family members and care givers. While a number of valid tools for assessing symptoms or function are available, there are unfortunately no recognized instruments for assessing expectations. The mismatch of expectations and the actual situation is a major source of distress and conflict. The present paper describes a simple way of visualizing this distress and conflict graphically. In our experience, this method is helpful in raising awareness of and enabling analysis of distress and conflict in patients, family members, and health care workers. It is also useful in the education of students and members of the palliative care team. It is illustrated with reference to four clinical situations.

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Year:  1997        PMID: 9176974     DOI: 10.1007/s005200050069

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  3 in total

Review 1.  Management of specific symptom complexes in patients receiving palliative care.

Authors:  E Bruera; C M Neumann
Journal:  CMAJ       Date:  1998-06-30       Impact factor: 8.262

2.  Consensus on treatment for residents in long-term care facilities: perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries.

Authors:  M Ten Koppel; H R W Pasman; J T van der Steen; H P J van Hout; M Kylänen; L Van den Block; T Smets; L Deliens; G Gambassi; K Froggatt; K Szczerbińska; B D Onwuteaka-Philipsen
Journal:  BMC Palliat Care       Date:  2019-08-29       Impact factor: 3.234

3.  Finding common ground to achieve a "good death": family physicians working with substitute decision-makers of dying patients. A qualitative grounded theory study.

Authors:  Amy Tan; Donna Manca
Journal:  BMC Fam Pract       Date:  2013-01-22       Impact factor: 2.497

  3 in total

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