Literature DB >> 9037958

The child's eye: memories of growing up with cystic fibrosis.

B J Christian1, J P D'Auria.   

Abstract

This qualitative study used a grounded theory approach to explore adolescent conceptualizations of their chronic illness experience and related life events. A purposive sample of 20 adolescents (12-18 years of age) with cystic fibrosis were interviewed. Adolescents used three protective strategies for reducing a sense of difference from peers: (1) keeping secrets, (2) hiding visible differences, and (3) discovering a new baseline. "Good friends" were a critical source of support and decreased the importance of differences in their social world. Interventions should focus on strategies for dealing with difficult peer situations and the negative reactions of others.

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Year:  1997        PMID: 9037958     DOI: 10.1016/S0882-5963(97)80016-4

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  8 in total

1.  General Life and Diabetes-Related Stressors in Early Adolescents With Type 1 Diabetes.

Authors:  Ariana M Chao; Karl E Minges; Chorong Park; Susan Dumser; Kathryn M Murphy; Margaret Grey; Robin Whittemore
Journal:  J Pediatr Health Care       Date:  2015-07-30       Impact factor: 1.812

2.  Psychological predictors of nutritional adherence in adolescents with cystic fibrosis.

Authors:  Adrienne P Borschuk; Stephanie S Filigno; Lisa Opipari-Arrigan; James Peugh; Lori J Stark
Journal:  Clin Nutr ESPEN       Date:  2019-06-19

3.  Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis.

Authors:  Leigh Ann Higa; Jamie McDonald; Deborah O Himes; Erin Rothwell
Journal:  J Community Genet       Date:  2015-09-04

4.  Assessing disease disclosure in adults with cystic fibrosis: the Adult Data for Understanding Lifestyle and Transitions (ADULT) survey Disclosure of disease in adults with cystic fibrosis.

Authors:  Avani C Modi; Alexandra L Quittner; Michael P Boyle
Journal:  BMC Pulm Med       Date:  2010-09-10       Impact factor: 3.317

5.  Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma.

Authors:  Simon Whalley; I C McManus
Journal:  BMC Pulm Med       Date:  2006-10-13       Impact factor: 3.317

6.  Perceptions of Adolescent Patients of the "Lived Experience" of Type 1 Diabetes.

Authors:  Kathryn M King; Philip J King; Rahul Nayar; Scott Wilkes
Journal:  Diabetes Spectr       Date:  2017-02

7.  The lived experience of adults with cystic fibrosis: what they would tell their younger selves about the gut.

Authors:  L Cave; L J Milnes
Journal:  J Hum Nutr Diet       Date:  2019-11-25       Impact factor: 3.089

8.  Using the internet to cope with chronic fatigue syndrome/myalgic encephalomyelitis in adolescence: a qualitative study.

Authors:  Roxanne Morin Parslow; Lucy Beasant; Amberly Brigden; Julie Barnett; Esther Crawley
Journal:  BMJ Paediatr Open       Date:  2018-08-23
  8 in total

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