Literature DB >> 9022231

Referring and reporting research participants at risk: views from urban adolescents.

C B Fisher1, A Higgins-D'Alessandro, J M Rau, T L Kuther, S Belanger.   

Abstract

Researching developmental risks of urban youth raises ethical concerns when an investigator discovers a participant is in jeopardy. This study collected data on 147 seventh, ninth, and eleventh graders' views of 3 investigator options: (1) taking no action and maintaining confidentiality, (2) reporting the problem to a concerned parent or adult, and (3) facilitating adolescent self-referrals. Participants judged these options within the context of 5 risk domains: substance abuse, child maltreatment, life-threatening behaviors, delinquency, and shyness. Judgments of reporting options were related to grade and ratings of risk severity, but not to moral reasoning. Confidentiality was viewed favorably for risk behaviors of low perceived severity or for which the consequences of adult discovery might introduce greater risk. Confidentiality was viewed unfavorably and reporting to adults favorably for child maltreatment and threats of suicide. Self-referral was viewed favorably across all grades and risk behaviors. Implications of adolescent perspectives for research ethics are discussed.

Entities:  

Mesh:

Year:  1996        PMID: 9022231

Source DB:  PubMed          Journal:  Child Dev        ISSN: 0009-3920


  6 in total

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Review 2.  Patient perspectives of medical confidentiality: a review of the literature.

Authors:  Pamela Sankar; Susan Mora; Jon F Merz; Nora L Jones
Journal:  J Gen Intern Med       Date:  2003-08       Impact factor: 5.128

3.  Ethical issues in youth surveys: potentials for conducting a national questionnaire study on adolescent schoolchildren's sexual experiences with adults.

Authors:  Karin Helweg-Larsen; Helmer Bøving-Larsen
Journal:  Am J Public Health       Date:  2003-11       Impact factor: 9.308

Review 4.  Development of a policy-relevant child maltreatment research strategy.

Authors:  Harriet L MacMillan; Ellen Jamieson; C Nadine Wathen; Michael H Boyle; Christine A Walsh; John Omura; Jason M Walker; Gregory Lodenquai
Journal:  Milbank Q       Date:  2007-06       Impact factor: 4.911

5.  The moral and legal need to disclose despite a certificate of confidentiality.

Authors:  Erin Talati Paquette; Lainie Friedman Ross
Journal:  Am J Bioeth       Date:  2014       Impact factor: 11.229

Review 6.  Biomedical ethics and clinical oversight in multisite observational neuroimaging studies with children and adolescents: The ABCD experience.

Authors:  Duncan B Clark; Celia B Fisher; Susan Bookheimer; Sandra A Brown; John H Evans; Christian Hopfer; James Hudziak; Ivan Montoya; Margaret Murray; Adolf Pfefferbaum; Deborah Yurgelun-Todd
Journal:  Dev Cogn Neurosci       Date:  2017-06-28       Impact factor: 6.464

  6 in total

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