Literature DB >> 9019040

Life situation and problems as reported by children with cancer and their parents.

K Enskär1, M Carlsson, M Golsäter, E Hamrin, A Kreuger.   

Abstract

In recent years, the intensification of treatment for children with cancer has resulted in a considerable increase in the number of those who are cured. The intensive treatment has, however, led to a number of problems for the children and their families. The aim of this study was to identify children's experience of problems related to their cancer and the disease-effect on the child's life situation. Five children with varying diagnoses and treatment plans and five parents were interviewed separately. The qualitative interview data were compared with a quantitative measurement of problems. The interview data were analyzed by two of the authors according to qualitative analysis processes. Six categories regarding influencing factors on the children's life situation were found: (1) medical treatment and side effects, (2) isolation, (3) togetherness and support, (4) being in the center, (5) feelings and reactions, and (6) quality of care. About half of the variables on the list of problems were mentioned in 1 or more of the 10 interviews. Study findings suggest that health care personnel help children with cancer to reduce their fear of painful and frightening procedures by creating a relationship with the child.

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Year:  1997        PMID: 9019040     DOI: 10.1177/104345429701400104

Source DB:  PubMed          Journal:  J Pediatr Oncol Nurs        ISSN: 1043-4542            Impact factor:   1.636


  10 in total

1.  Exploring concerns of children with cancer.

Authors:  Karen Moody; Marc Meyer; Carol A Mancuso; Mary Charlson; Laura Robbins
Journal:  Support Care Cancer       Date:  2006-04-26       Impact factor: 3.603

2.  Evidence-Based Recommendations for the Appropriate Level of Sedation to Manage Pain in Pediatric Oncology Patients Requiring Procedures: A Systematic Review From the Children's Oncology Group [Formula: see text].

Authors:  Elizabeth A Duffy; Tara Adams; Clifton P Thornton; Beth Fisher; Jennifer Misasi; Sally McCollum
Journal:  J Pediatr Oncol Nurs       Date:  2019-07-13       Impact factor: 1.636

3.  Psychometric properties of the DISABKIDS Chronic Generic Module (DCGM-37) when used in children undergoing treatment for cancer.

Authors:  Margareta af Sandeberg; Eva M Johansson; Peter Hagell; Lena Wettergren
Journal:  Health Qual Life Outcomes       Date:  2010-09-28       Impact factor: 3.186

4.  Procedure-related pain among adult patients with hematologic malignancies.

Authors:  Y Lidén; O Landgren; S Arnér; K-F Sjölund; E Johansson
Journal:  Acta Anaesthesiol Scand       Date:  2009-03       Impact factor: 2.105

5.  Children's perspective on health-related quality of life during active treatment for acute lymphoblastic leukemia: an advanced content analysis approach.

Authors:  Tha'er G Momani; Belinda N Mandrell; Jami S Gattuso; Nancy K West; Stephanie L Taylor; Pamela S Hinds
Journal:  Cancer Nurs       Date:  2015 Jan-Feb       Impact factor: 2.592

6.  The resilience in illness model, part 1: exploratory evaluation in adolescents and young adults with cancer.

Authors:  Joan E Haase; Eileen K Kintner; Patrick O Monahan; Sheri L Robb
Journal:  Cancer Nurs       Date:  2014 May-Jun       Impact factor: 2.592

7.  Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes.

Authors:  Eve Namisango; Katherine Bristowe; Matthew J Allsop; Fliss E M Murtagh; Melanie Abas; Irene J Higginson; Julia Downing; Richard Harding
Journal:  Patient       Date:  2019-02       Impact factor: 3.883

8.  Determining, ranking and comparing treatment stressors in children and adolescents with cancer in tehran.

Authors:  Narges Azizi; Ladan Mansour; Karineh Tahmassian; Farideh Mosavi
Journal:  Iran J Cancer Prev       Date:  2012

9.  The Needs of Parents of Children Suffering from Cancer-Continuation of Research.

Authors:  Anna Lewandowska
Journal:  Children (Basel)       Date:  2022-01-23

Review 10.  Palliative Care in Paediatric Oncology: an Update.

Authors:  Naveen Salins; Sean Hughes; Nancy Preston
Journal:  Curr Oncol Rep       Date:  2022-01-21       Impact factor: 5.075

  10 in total

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