PURPOSE/ OBJECTIVES: To make recommendations for the use of informational strategies and the development of resources for family caregivers of patients receiving marrow transplantation based on their identified informational needs. DATA SOURCES: Literature review and research that identifies informational needs of family caregivers of patients receiving marrow transplantation. DATA SYNTHESIS: Stetz, McDonald, and Compton described informational needs of family caregivers. The needs fell into five major categories: Preparing for Caregiving, Managing the Care, Facing Challenges, Developing Supportive Strategies, and Discovering Unanticipated Rewards and Benefits. CONCLUSIONS: Family members and close friends are assuming increasing responsibilities in providing care in the home for the patient during marrow transplantation. Much of this care occurs when the patient is being treated on an outpatient basis. The responsibilities are demanding and involve helping the patient access treatment, evaluate and deal with the stress of information, gain skills with complex procedures, manage symptoms at home, and communicate with healthcare providers. For this essential role, family caregivers need to be educated and supported by appropriate resources. IMPLICATIONS FOR NURSING PRACTICE: Family caregivers' need for information begins well before the patient's treatment is initiated at the selected center. Availability of accurate, specific written guidelines and personal contact is essential. Educational strategies that prepare family members before the caregiving skills are needed could include skill development, access to and use of resources, homecare management, decision making, and self-care.
PURPOSE/ OBJECTIVES: To make recommendations for the use of informational strategies and the development of resources for family caregivers of patients receiving marrow transplantation based on their identified informational needs. DATA SOURCES: Literature review and research that identifies informational needs of family caregivers of patients receiving marrow transplantation. DATA SYNTHESIS: Stetz, McDonald, and Compton described informational needs of family caregivers. The needs fell into five major categories: Preparing for Caregiving, Managing the Care, Facing Challenges, Developing Supportive Strategies, and Discovering Unanticipated Rewards and Benefits. CONCLUSIONS: Family members and close friends are assuming increasing responsibilities in providing care in the home for the patient during marrow transplantation. Much of this care occurs when the patient is being treated on an outpatient basis. The responsibilities are demanding and involve helping the patient access treatment, evaluate and deal with the stress of information, gain skills with complex procedures, manage symptoms at home, and communicate with healthcare providers. For this essential role, family caregivers need to be educated and supported by appropriate resources. IMPLICATIONS FOR NURSING PRACTICE: Family caregivers' need for information begins well before the patient's treatment is initiated at the selected center. Availability of accurate, specific written guidelines and personal contact is essential. Educational strategies that prepare family members before the caregiving skills are needed could include skill development, access to and use of resources, homecare management, decision making, and self-care.
Authors: Jaime M Preussler; Lih-Wen Mau; Navneet S Majhail; Margaret Bevans; Emilie Clancy; Carolyn Messner; Leslie Parran; Kate A Pederson; Stacy Stickney Ferguson; Kent Walters; Elizabeth A Murphy; Ellen M Denzen Journal: Support Care Cancer Date: 2019-03-09 Impact factor: 3.603
Authors: T M Graff; A K Singavi; W Schmidt; D Eastwood; W R Drobyski; M Horowitz; J Palmer; M Pasquini; D J Rizzo; W Saber; P Hari; T S Fenske Journal: Bone Marrow Transplant Date: 2015-04-13 Impact factor: 5.483