Literature DB >> 8858782

An empirical study of parents' reaction to the diagnosis of congenital heart disease in infants.

J K Cohn1.   

Abstract

Health care professionals assume that parents of newborn babies diagnosed with congenital heart disease experience more negative feelings of sadness, anger, fear and guilt than parents of normal newborns. Since there have been no previous empirical studies, this study sought to challenge those assumptions. Results of the study suggest that parents of such infants were indeed more fearful than parents of normal babies. The data also indicates that all parents experience sadness, anger and fear, but parents of normal babies experience less anger and sadness. Many implications for social work practice, education and research are indicated as a result of this study.

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Year:  1996        PMID: 8858782     DOI: 10.1300/J010v23n02_04

Source DB:  PubMed          Journal:  Soc Work Health Care        ISSN: 0098-1389


  9 in total

1.  Quality of life in families of children with congenital heart disease.

Authors:  Lutz Goldbeck; Juliane Melches
Journal:  Qual Life Res       Date:  2005-10       Impact factor: 4.147

Review 2.  Current research status on the psychological situation of parents of children with congenital heart disease.

Authors:  Sabina Biber; Caroline Andonian; Jürgen Beckmann; Peter Ewert; Sebastian Freilinger; Nicole Nagdyman; Harald Kaemmerer; Renate Oberhoffer; Lars Pieper; Rhoia Clara Neidenbach
Journal:  Cardiovasc Diagn Ther       Date:  2019-10

3.  Mothers of infants with congenital heart defects: well-being from pregnancy through the child's first six months.

Authors:  Maria T Grønning Dale; Oivind Solberg; Henrik Holmstrøm; Markus A Landolt; Leif T Eskedal; Margarete E Vollrath
Journal:  Qual Life Res       Date:  2011-05-05       Impact factor: 4.147

4.  Mindfulness-based retreat for mothers of paediatric heart transplant recipients: protocol for a pilot intervention study.

Authors:  Taylor Robertson; Sara Ahola Kohut; Heather Telfer; Mirna Seifert-Hansen; Joanna Mitchell; Samantha J Anthony
Journal:  BMJ Open       Date:  2022-07-08       Impact factor: 3.006

5.  Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children.

Authors:  S Lawoko; J J F Soares
Journal:  Qual Life Res       Date:  2003-09       Impact factor: 4.147

6.  Well-being in mothers of children with congenital heart defects: a 3-year follow-up.

Authors:  Maria T Grønning Dale; Øivind Solberg; Henrik Holmstrøm; Markus A Landolt; Leif T Eskedal; Margarete E Vollrath
Journal:  Qual Life Res       Date:  2012-11-30       Impact factor: 4.147

7.  Facets of parenting a child with hypoplastic left heart syndrome.

Authors:  Gwen R Rempel; Laura G Rogers; Vinitha Ravindran; Joyce Magill-Evans
Journal:  Nurs Res Pract       Date:  2012-04-02

8.  Family Function, Quality of Life, and Well-Being in Parents of Infants With Hypoplastic Left Heart Syndrome.

Authors:  Kathleen A Mussatto; Maria I Van Rompay; Felicia L Trachtenberg; Victoria Pemberton; Lisa Young-Borkowski; Karen Uzark; Danielle Hollenbeck-Pringle; Carolyn Dunbar-Masterson; Patricia Infinger; Patricia Walter; Kathleen Sawin
Journal:  J Fam Nurs       Date:  2021-02-04       Impact factor: 2.680

9.  Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia.

Authors:  Saad Khoshhal; Khaled Al-Harbi; Ibrahim Al-Mozainy; Saeed Al-Ghamdi; Adnan Aselan; Mohammad Allugmani; Sherif Salem; Dina El-Agamy; Hany Abo-Haded
Journal:  Health Qual Life Outcomes       Date:  2019-12-16       Impact factor: 3.186

  9 in total

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