Literature DB >> 8578377

Construction and validation of a specific quality of life instrument for adolescents with spine deformities.

J M Climent1, A Reig, J Sánchez, C Roda.   

Abstract

STUDY
DESIGN: The development and construction of a specific instrument for measuring quality of life in adolescents with spine deformities was investigated.
OBJECTIVES: To assess the validity and reliability of the Quality of Life Profile for Spine Deformities. SUMMARY OF BACKGROUND DATA: An 88-item questionnaire was self-administered to 174 patients ranging in age from 10 to 20 years with spine deformities. Items were rated on a five-point Likert scale. Higher scores means high level of impairment in quality of life. Age, gender, menarche or voice change, salient symptoms in the medical record, ordinary parameters on physical examination, and measurements on standard anteroposterior and lateral radiographs were recorded. The retest was done 10 days after the initial administration in a subsample of 35 patients.
METHODS: The test-retest reliability was analyzed calculating the intraclass correlation coefficient. Internal consistency was measured with the Cronbach's alpha method. Factor analysis was used to obtain a reduced number of variables. Construct validity was assessed using the principal components model of factor analysis based on the correlation matrix and using the varimax computer algorithm for orthogonal rotation. Discriminant validity was assessed using the Kruskal-Wallis test.
RESULTS: The Quality of Life Profile for Spine Deformities contained 21 items and five factors in conceptual terms labeled psychosocial functioning, sleep disturbances, back pain, body image, and back flexibility. The overall questionnaire score showed an internal consistency of 0.88 and a test-retest correlation of 0.91. Patients with structural curves showed significantly higher scores in all dimensions of the Quality of Life Profile for Spine Deformities except for the subscale of body image than patients with postural curves. When patients were grouped according to the symptom of back pain, those with backache had a significantly higher quality of life overalls score and scores in the dimensions of sleep disturbances and pain. Brace-treated patients showed statistically significant differences in the quality of life overall score and scores in the dimensions of psychosocial functioning and back flexibility.
CONCLUSIONS: The instrument developed for measuring quality of life in patients with spine deformities during the period of bone growth has validity, internal consistency, and high test-retest reliability. The conceptualization of quality of life of the Quality of Life Profile for Spine Deformity includes psychosocial dimensions and pain and function.

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Year:  1995        PMID: 8578377     DOI: 10.1097/00007632-199509150-00011

Source DB:  PubMed          Journal:  Spine (Phila Pa 1976)        ISSN: 0362-2436            Impact factor:   3.468


  21 in total

1.  How do idiopathic scoliosis patients who improve after surgery differ from those who do not exceed a minimum detectable change?

Authors:  Joan Bago; Francisco Javier Sanchez Perez-Grueso; Ferran Pellise; Esther Les
Journal:  Eur Spine J       Date:  2011-09-20       Impact factor: 3.134

2.  The Spanish version of the Child Health and Illness Profile-Adolescent Edition (CHIP-AE).

Authors:  L Rajmil; V Serra-Sutton; J Alonso; B Starfield; A W Riley; J R Vázquez
Journal:  Qual Life Res       Date:  2003-05       Impact factor: 4.147

3.  Outcome in adolescent idiopathic scoliosis after brace treatment and surgery assessed by means of the Scoliosis Research Society Instrument 24.

Authors:  Karen Petra Weigert; Linda Marie Nygaard; Finn Bjarke Christensen; Ebbe Stender Hansen; Cody Bünger
Journal:  Eur Spine J       Date:  2005-11-25       Impact factor: 3.134

4.  CORR Insights®: When Should We Wean Bracing for Adolescent Idiopathic Scoliosis?

Authors:  Harish Hosalkar
Journal:  Clin Orthop Relat Res       Date:  2019-09       Impact factor: 4.176

Review 5.  A review of measures of quality of life for children with chronic illness.

Authors:  C Eiser; R Morse
Journal:  Arch Dis Child       Date:  2001-03       Impact factor: 3.791

Review 6.  Evaluation of quality of life and risk factors affecting quality of life in adolescent idiopathic scoliosis.

Authors:  Jing Han; Qintong Xu; Yi Yang; Zhengjun Yao; Chi Zhang
Journal:  Intractable Rare Dis Res       Date:  2015-02

7.  Development and pilot test of the shriners pediatric instrument for neuromuscular scoliosis (SPNS): a quality of life questionnaire for children with spinal cord injuries.

Authors:  Louis Hunter; Fred Molitor; Ross S Chafetz; Mary Jane Mulcahey; Lawrence C Vogel; Randal R Betz; Craig M McDonald
Journal:  J Spinal Cord Med       Date:  2007       Impact factor: 1.985

8.  The Trunk Appearance Perception Scale (TAPS): a new tool to evaluate subjective impression of trunk deformity in patients with idiopathic scoliosis.

Authors:  Juan Bago; Judith Sanchez-Raya; Francisco Javier Sanchez Perez-Grueso; Jose Maria Climent
Journal:  Scoliosis       Date:  2010-03-25

9.  German validation of the quality of life profile for spinal disorders (QLPSD).

Authors:  Tobias L Schulte; Meinald T Thielsch; Georg Gosheger; Patrick Boertz; Jan Henrik Terheyden; Mark Wetterkamp
Journal:  Eur Spine J       Date:  2017-09-09       Impact factor: 3.134

Review 10.  Outcome instruments to assess scoliosis surgery.

Authors:  Juan Bagó; Jose Ma Climent; Francisco J S Pérez-Grueso; Ferran Pellisé
Journal:  Eur Spine J       Date:  2012-05-11       Impact factor: 3.134

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