Literature DB >> 8459439

What counts as success in genetic counselling?

R F Chadwick1.   

Abstract

The question of what counts as a successful outcome of the process of genetics counselling has recently become central because of the increasing calls for efficiency in health care, and for means of measuring efficiency. Angus Clarke has drawn attention to this trend, and has argued against both a measure in terms of the number of terminations of pregnancy performed as a result of counselling, and an assessment in terms of the contribution of genetics counselling to a national eugenics policy. He suggests instead a measure of workload. There are good arguments for supporting Clarke's position up to a point. In looking for an appropriate measure, much turns on how genetics counselling is defined. It is here understood in the context of an autonomy model of health care. It is argued that there is a contradiction between such an interpretation and the termination measure of outcome. The political philosophy underlying this outcome is also defective. Workload is not sufficient as a measure of outcome however; it is essential to look at the proper goals of an activity. It is argued that these must be connected in some way with the genetic health of the population; that the promotion of reproductive autonomy itself is not sufficient as a goal. The concern for genetic health, however, is interpreted in a way that avoids Clarke's concerns about a national eugenics policy.

Keywords:  Genetics and Reproduction

Mesh:

Year:  1993        PMID: 8459439      PMCID: PMC1376168          DOI: 10.1136/jme.19.1.43

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  2 in total

1.  Hospital discharge of frail elderly people: social and ethical considerations in the discharge decision-making process.

Authors:  Ruth Chadwick; Jill Russell
Journal:  Ageing Soc       Date:  1989-09

2.  Genetics, ethics, and audit.

Authors:  A Clarke
Journal:  Lancet       Date:  1990-05-12       Impact factor: 79.321

  2 in total
  7 in total

1.  Genetic counseling: the impact in Indian milieu.

Authors:  Shubha R Phadke; Amita Pandey; Ratna Dua Puri; S J Patil
Journal:  Indian J Pediatr       Date:  2004-12       Impact factor: 1.967

2.  Evaluating genetic counseling: client expectations, psychological adjustment and satisfaction with service.

Authors:  Angela Davey; Kristie Rostant; Karen Harrop; Jack Goldblatt; Peter O'Leary
Journal:  J Genet Couns       Date:  2005-06       Impact factor: 2.537

3.  A new definition of Genetic Counseling: National Society of Genetic Counselors' Task Force report.

Authors:  Robert Resta; Barbara Bowles Biesecker; Robin L Bennett; Sandra Blum; Susan Estabrooks Hahn; Michelle N Strecker; Janet L Williams
Journal:  J Genet Couns       Date:  2006-04       Impact factor: 2.537

4.  Emerging quality improvement measures in genetic counseling.

Authors:  D H Lea
Journal:  J Genet Couns       Date:  1996-09       Impact factor: 2.537

5.  Discussions about predictive genetic testing for Lynch syndrome: the role of health professionals and families in decisions to decline.

Authors:  Anaita Kanga-Parabia; Clara Gaff; Louisa Flander; Mark Jenkins; Louise A Keogh
Journal:  Fam Cancer       Date:  2018-10       Impact factor: 2.375

6.  Antenatal screening and its possible meaning from unborn baby's perspective.

Authors:  Sahin Aksoy
Journal:  BMC Med Ethics       Date:  2001-05-22       Impact factor: 2.652

7.  The Human Genome Project and eugenic concerns.

Authors:  K L Garver; B Garver
Journal:  Am J Hum Genet       Date:  1994-01       Impact factor: 11.025

  7 in total

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