Literature DB >> 8119833

Diagnostic closure and the spread of uncertainty.

M H Cohen.   

Abstract

When a child is diagnosed with a life-threatening, chronic illness, the taken-for-granted world of the child's parents is destroyed. From that moment on, they must learn to manage life under very uncertain conditions. The findings reported here are from a more comprehensive grounded theory study that sought a plausible explanation for parental behavior under conditions of sustained uncertainty. This report describes the emergence of uncertainty as a multidimensional concept that permeates every aspect of family life following the diagnostic announcement. The noncategorical nature of the dimensions of uncertainty found in all life-threatening, chronic childhood illnesses provides a strong argument for preparing nurses in specialties that are conceptually, rather than medically, based.

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Year:  1993        PMID: 8119833     DOI: 10.3109/01460869309078270

Source DB:  PubMed          Journal:  Issues Compr Pediatr Nurs        ISSN: 0146-0862


  4 in total

1.  Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditions.

Authors:  Anne C Madeo; Kathleen E O'Brien; Barbara A Bernhardt; Barbara B Biesecker
Journal:  Am J Med Genet A       Date:  2012-06-18       Impact factor: 2.802

2.  The Association of Illness-related Uncertainty With Mental Health in Systemic Autoimmune Rheumatic Diseases.

Authors:  Zachary S Wallace; Claire Cook; Lucy Finkelstein-Fox; Xiaoqing Fu; Flavia V Castelino; Hyon K Choi; Cory Perugino; John H Stone; Elyse R Park; Daniel L Hall
Journal:  J Rheumatol       Date:  2022-04-01       Impact factor: 5.346

3.  How do parents experience being asked to enter a child in a randomised controlled trial?

Authors:  Valerie Shilling; Bridget Young
Journal:  BMC Med Ethics       Date:  2009-02-16       Impact factor: 2.652

4.  Why we need a process on breaking news of Juvenile Idiopathic Arthritis: a mixed methods study.

Authors:  Aurélie Chausset; Anne-Laure Gominon; Nathalie Montmaneix; Stéphane Echaubard; Séverine Guillaume-Czitrom; Benoit Cambon; Cécile Miele; Emmanuelle Rochette; Etienne Merlin
Journal:  Pediatr Rheumatol Online J       Date:  2016-05-21       Impact factor: 3.054

  4 in total

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