Literature DB >> 7667650

The process of self-report of impairment in clinical research.

M R Luborsky1.   

Abstract

This paper examines how labels for impairment are negotiated by people with disabilities during clinical assessment. It builds on Robert Murphy's (1987) explanations of the disability experience as rooted in the individual's sense of having multiple past, present and intended future body-selves. Using transcripts of five consecutive daily clinical research assessments, it describes the conduct of clinical research assessments with an older man with stroke-related motor impairments and dysphoria. It also examines how the researcher as Other shapes a person's sense of identity, experience and quality of life by regulating the medical labels for personal experience, and by authoring socially authoritative scientific models of disabilities. Points of dissension (regarding identity, discourse and time perspectives) and collaboration are identified and then illustrated with excerpts from the transcripts. Analysis reveals how salient personal experiences are locally asserted in discourse, and selectively misrepresented in the clinical research record.

Entities:  

Mesh:

Year:  1995        PMID: 7667650      PMCID: PMC4219648          DOI: 10.1016/0277-9536(94)00359-2

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  9 in total

1.  Chronic illness as biographical disruption.

Authors:  M Bury
Journal:  Sociol Health Illn       Date:  1982-07

2.  Sampling in Qualitative Research: Rationale, Issues, and Methods.

Authors:  Mark R Luborsky; Robert L Rubinstein
Journal:  Res Aging       Date:  1995-03-01

Review 3.  The biomedicalization of aging: dangers and dilemmas.

Authors:  C L Estes; E A Binney
Journal:  Gerontologist       Date:  1989-10

4.  The structure of variation in affect among depressed and nondepressed elders.

Authors:  M H Kleban; M P Lawton; J R Nesselroade; P Parmelee
Journal:  J Gerontol       Date:  1992-05

5.  Alchemists' Visions: Cultural Norms in Eliciting and Analyzing Life History Narratives.

Authors:  Mark R Luborsky
Journal:  J Aging Stud       Date:  1990

6.  Physical disability and social liminality: a study in the rituals of adversity.

Authors:  R F Murphy; J Scheer; Y Murphy; R Mack
Journal:  Soc Sci Med       Date:  1988       Impact factor: 4.634

7.  The independence of positive and negative affect.

Authors:  E Diener; R A Emmons
Journal:  J Pers Soc Psychol       Date:  1984-11

8.  The romance with personal meaning in gerontology: cultural aspects of life themes.

Authors:  M R Luborsky
Journal:  Gerontologist       Date:  1993-08

Review 9.  Bringing the social back in: a critique of the biomedicalization of dementia.

Authors:  K A Lyman
Journal:  Gerontologist       Date:  1989-10
  9 in total
  6 in total

1.  Adherence discourse among African-American women taking HAART.

Authors:  A Sankar; M Luborsky; P Schuman; G Roberts
Journal:  AIDS Care       Date:  2002-04

2.  Attuning Assessment to the Client: Recent Advances in Theory and Methodology.

Authors:  Mark Luborsky
Journal:  Generations       Date:  1997

3.  Emerging concerns of older stroke patients about assistive device use.

Authors:  L N Gitlin; M R Luborsky; R L Schemm
Journal:  Gerontologist       Date:  1998-04

4.  Developing a Community-Based Definition of Needs for Persons Living with Chronic HIV.

Authors:  Andrea Sankar; Mark Luborsky
Journal:  Hum Organ       Date:  2003

5.  What is a missed dose? Implications for construct validity and patient adherence.

Authors:  A P Sankar; D C Nevedal; S Neufeld; M R Luborsky
Journal:  AIDS Care       Date:  2007-07

6.  The Retirement process: Making the Person and Cultural Meanings malleable.

Authors:  Mark R Luborsky
Journal:  Med Anthropol Q       Date:  1994-12
  6 in total

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