Literature DB >> 7137439

Mandatory PKU screening: the other side of the looking glass.

G J Annas.   

Abstract

The challenge that PKU screening programs face is to be effective without sacrificing individual liberty. Most states have assumed that this is impossible, and have enacted mandatory PKU screening tests. It now appears that in fact voluntary screening for PKU can be effective. Accordingly, it seems appropriate to reexamine existing mandatory screening statutes to determine if we can replace government coercion with voluntary informed consent. Focus should be placed on the proper role of the government in screening, and on improving the consent process, and not on those few couples who withhold consent.

Entities:  

Keywords:  Analytical Approach; Genetics and Reproduction

Mesh:

Year:  1982        PMID: 7137439      PMCID: PMC1650545          DOI: 10.2105/ajph.72.12.1401

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  4 in total

1.  "Fitness" for birth and reproduction: legal implications of genetic screening.

Authors:  George J Annas; Brian Coyne
Journal:  Fam Law Q       Date:  1975

2.  'A wonderful case and an irrational tragedy': The Phillip Becker case continues.

Authors:  G J Annas
Journal:  Hastings Cent Rep       Date:  1982-02       Impact factor: 2.683

3.  A survey to evaluate parental consent as public policy for neonatal screening.

Authors:  R Faden; A J Chwalow; N A Holtzman; S D Horn
Journal:  Am J Public Health       Date:  1982-12       Impact factor: 9.308

4.  Parental rights, child welfare, and public health: the case of PKU screening.

Authors:  R R Faden; N A Holtzman; A J Chwalow
Journal:  Am J Public Health       Date:  1982-12       Impact factor: 9.308

  4 in total
  3 in total

Review 1.  The ethics of screening for early intervention in HIV disease.

Authors:  C Levine; R Bayer
Journal:  Am J Public Health       Date:  1989-12       Impact factor: 9.308

2.  Considering consent: a structural equation modelling analysis of factors influencing decisional quality when accepting newborn screening.

Authors:  Stuart G Nicholls; Kevin W Southern
Journal:  J Inherit Metab Dis       Date:  2013-09-17       Impact factor: 4.982

3.  Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States.

Authors:  E H Hiller; G Landenburger; M R Natowicz
Journal:  Am J Public Health       Date:  1997-08       Impact factor: 9.308

  3 in total

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