Literature DB >> 6444999

Huntington's chorea. Its impact on the spouse.

M B Hans, A H Koeppen.   

Abstract

Huntington's chorea imposes a direct imprint on the life of the spouse of the affected patient. Interviews with 15 wives of patients with Huntington's chorea revealed that none of them knew prior to marriage of the presence of a heritable disease within the husband's family. When informed of the diagnosis, the wife reacted with disbelief and denial. As she became aware of the steady progression of the disease and the threat of transmission to her children, her response changed to resentment and hostility. The disease permeated the entire life of the unaffected spouse: her life style, family responsibility, goals, and marital relationship. In essence, the wife became inextricably involved in the disease and suffered continuous trauma from it.

Entities:  

Mesh:

Year:  1980        PMID: 6444999

Source DB:  PubMed          Journal:  J Nerv Ment Dis        ISSN: 0022-3018            Impact factor:   2.254


  9 in total

1.  Psychological functioning before predictive testing for Huntington's disease: the role of the parental disease, risk perception, and subjective proximity of the disease.

Authors:  M Decruyenaere; G Evers-Kiebooms; A Boogaerts; J J Cassiman; T Cloostermans; K Demyttenaere; R Dom; J P Fryns
Journal:  J Med Genet       Date:  1999-12       Impact factor: 6.318

2.  Further evidence of reliability and validity of the Huntington's disease quality of life battery for carers: Italian and French translations.

Authors:  Aimee Aubeeluck; Julie Dorey; Ferdinando Squitieri; Emilie Clay; Edward J N Stupple; Annunziata De Nicola; Heather Buchanan; Tiziana Martino; Mondher Toumi
Journal:  Qual Life Res       Date:  2012-07-21       Impact factor: 4.147

3.  'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients.

Authors:  Aimee Victoria Aubeeluck; Heather Buchanan; Edward J N Stupple
Journal:  Qual Life Res       Date:  2011-11-13       Impact factor: 4.147

4.  Patient-reported outcome measures in Huntington disease: Quality of life in neurological disorders (Neuro-QoL) social functioning measures.

Authors:  Noelle E Carlozzi; Elizabeth A Hahn; Siera M Goodnight; Anna L Kratz; Jane S Paulsen; Julie C Stout; Samuel Frank; Jennifer A Miner; David Cella; Richard C Gershon; Stephen G Schilling; Rebecca E Ready
Journal:  Psychol Assess       Date:  2017-05-29

5.  Living with Huntington's disease: illness perceptions, coping mechanisms, and spouses' quality of life.

Authors:  D I Helder; A A Kaptein; G M J Van Kempen; J Weinman; J C Van Houwelingen; R A C Roos
Journal:  Int J Behav Med       Date:  2002

6.  How do partners find out about the risk of Huntington's disease in couple relationships?

Authors:  Karen Forrest Keenan; Sheila A Simpson; Zosia Miedzybrodzka; David A Alexander; June Semper
Journal:  J Genet Couns       Date:  2013-01-09       Impact factor: 2.537

7.  Avoidance as a strategy of (not) coping: qualitative interviews with carers of Huntington's Disease patients.

Authors:  Alison Lowit; Edwin R van Teijlingen
Journal:  BMC Fam Pract       Date:  2005-09-14       Impact factor: 2.497

8.  Quality of life in couples living with Huntington's disease: the role of patients' and partners' illness perceptions.

Authors:  A A Kaptein; M Scharloo; D I Helder; L Snoei; G M J van Kempen; J Weinman; J C van Houwelingen; R A C Roos
Journal:  Qual Life Res       Date:  2007-03-21       Impact factor: 4.147

9.  The "Real World"? Effects of Online Communication about Prostate Cancer on Offline Communication.

Authors:  Amelia Burke-Garcia; Kevin B Wright
Journal:  Comput Struct Biotechnol J       Date:  2018-10-12       Impact factor: 7.271

  9 in total

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