Literature DB >> 36208403

French Translation and Cross-cultural Adaptation of the Scale for the Assessment and Rating of Ataxia.

Dax Bourcier1, Nicolas Bélair1,2, Élyse-Anne Pedneault-Tremblay2, Isabelle Lessard2, Thomas Klockgether3,4, Matthis Synofzik5,6, Caroline Rahn7, Bernard Brais8, Elise Duchesne2,9, Cynthia Gagnon10,11.   

Abstract

The Scale for the Assessment and Rating of Ataxia (SARA) is a widely used scale for assessing the severity of ataxia in clinics, natural history studies, and treatment trials worldwide. However, no French translation with validated cross-cultural adaptation is available. This study aimed to translate and adapt the SARA into French. The translation process was conducted according to the ISPOR guidelines for the translation and cultural adaptation process for patient-reported outcomes. A total of five translators, an expert committee, and two physiotherapists took part in the process to assess and ensure comprehension and language equivalences of the final French version. A few misinterpretations were pointed out during the translation process and were changed accordingly by the translation team. The French version of the SARA is ready to be used in clinical and research settings with French-speaking populations living with ataxia.
© 2022. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  Ataxia; Cross-cultural adaptation; ISPOR guidelines; Psychometric properties; Translation

Year:  2022        PMID: 36208403     DOI: 10.1007/s12311-022-01484-3

Source DB:  PubMed          Journal:  Cerebellum        ISSN: 1473-4222            Impact factor:   3.648


  9 in total

1.  Annual change in Friedreich's ataxia evaluated by the Scale for the Assessment and Rating of Ataxia (SARA) is independent of disease severity.

Authors:  Cecilia Marelli; Julie Figoni; Perrine Charles; Mathieu Anheim; Maya Tchikviladze; Carlo-Maria Vincitorio; Sophie Tezenas du Montcel; Alexis Brice; Jean Louis Golmard; Alexandra Dürr
Journal:  Mov Disord       Date:  2011-11-10       Impact factor: 10.338

2.  Comparison of three clinical rating scales in Friedreich ataxia (FRDA).

Authors:  Katrin Bürk; Ulrike Mälzig; Stefanie Wolf; Suzette Heck; Konstantinos Dimitriadis; Tanja Schmitz-Hübsch; Sascha Hering; Tobias M Lindig; Verena Haug; Dagmar Timmann; Ingrid Degen; Bernd Kruse; Jan-Markus Dörr; Susanne Ratzka; Anja Ivo; Ludger Schöls; Sylvia Boesch; Thomas Klockgether; Thomas Klopstock; Jörg B Schulz
Journal:  Mov Disord       Date:  2009-09-15       Impact factor: 10.338

3.  A model of equivalence in the cultural adaptation of HRQoL instruments: the universalist approach.

Authors:  M Herdman; J Fox-Rushby; X Badia
Journal:  Qual Life Res       Date:  1998-05       Impact factor: 4.147

Review 4.  Developing and evaluating cross-cultural instruments from minimum requirements to optimal models.

Authors:  M Bullinger; R Anderson; D Cella; N Aaronson
Journal:  Qual Life Res       Date:  1993-12       Impact factor: 4.147

5.  Inter-rater reliability and validity of two ataxia rating scales in children with brain tumours.

Authors:  H Hartley; B Pizer; S Lane; C Sneade; R Pratt; A Bishop; R Kumar
Journal:  Childs Nerv Syst       Date:  2015-03-04       Impact factor: 1.475

6.  Translation and validation into Brazilian version of the Scale of the Assessment and Rating of Ataxia (SARA).

Authors:  Pedro Braga-Neto; Clecio Godeiro-Junior; Lívia Almeida Dutra; José Luiz Pedroso; Orlando Graziani Povoas Barsottini
Journal:  Arq Neuropsiquiatr       Date:  2010-04       Impact factor: 1.420

7.  Reliability and validity of the International Cooperative Ataxia Rating Scale: a study in 156 spinocerebellar ataxia patients.

Authors:  Tanja Schmitz-Hübsch; Sophie Tezenas du Montcel; Laszlo Baliko; Sylvia Boesch; Sara Bonato; Roberto Fancellu; Paola Giunti; Christoph Globas; Jun-Suk Kang; Berry Kremer; Caterina Mariotti; Bela Melegh; Maryla Rakowicz; Rafal Rola; Sylvie Romano; Lodger Schöls; Sandra Szymanski; Bart P C van de Warrenburg; Elzbieta Zdzienicka; Alexandra Dürr; Thomas Klockgether
Journal:  Mov Disord       Date:  2006-05       Impact factor: 10.338

8.  Documenting the psychometric properties of the scale for the assessment and rating of ataxia to advance trial readiness of Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay.

Authors:  Dax Bourcier; Mathieu Bélanger; Isabelle Côté; Bernard Brais; Matthis Synofzik; Jean-Denis Brisson; Xavier Rodrigue; Maude-Marie Gagnon; Jean Mathieu; Cynthia Gagnon
Journal:  J Neurol Sci       Date:  2020-07-18       Impact factor: 3.181

9.  [Reliability of the Japanese version of the Scale for the Assessment and Rating of Ataxia (SARA)].

Authors:  Kazunori Sato; Ichiro Yabe; Hiroyuki Soma; Kenichi Yasui; Mizuki Ito; Takayoshi Shimohata; Osamu Onodera; Kenji Nakashima; Gen Sobue; Masatoyo Nishizawa; Hidenao Sasaki
Journal:  Brain Nerve       Date:  2009-05
  9 in total

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