Literature DB >> 36200028

Knowledge and perception of inborn errors of metabolism (IEMs) among healthcare students at a selected public university in Klang Valley, Malaysia.

Shi Hui Liew1, Jing Ying Lim2,3, Hanis Mastura Yahya1,3, Roslee Rajikan1,3.   

Abstract

Healthcare providers play an important role in improving the health of Inborn Error of Metabolism (IEM) patients. However, IEM knowledge level among local healthcare students has yet to be determined. Thus, the aim of this study is to assess the knowledge and perception of IEM among local healthcare students. An online self-administered questionnaire was distributed to 378 students across the Faculty of Health Science, Pharmacy and Dentistry from a selected public university in Lembah Klang, Malaysia. For knowledge, a score of 1 is assigned to each correct answer with a maximum total score of 14. Likert scale was used to determine their perception of IEM. The total mean score of IEM knowledge among healthcare students is 5.8. There was no significant difference of mean score of IEM knowledge among the students from the Faculty of Health Science (6.1 ± 2.7), Pharmacy (5.5 ± 2.6) and Dentistry (5.8 ± 2.8). However, the score of knowledge is observed to be significantly different by ethnicity, religion and family history of IEM (p < 0.05). Furthermore, students with experience of meeting an IEM patient and attending IEM classes scored higher than those with no experience (p < 0.05). Most of the healthcare students (89.5%) perceived their knowledge to be insufficient and very poor. Majority of the students from faculty of pharmacy (70.8%) agreed that the IEM course should be mandatory compared to health sciences and dentistry (p < 0.05). This study identified an overall inadequacy of knowledge of IEM among healthcare students. There is a pressing need to improve the IEM-related knowledge and awareness of Malaysian healthcare students. This can be accomplished by incorporating online classes that emphasizes the treatment and management of IEMs in the university curriculum. 2022, International Research and Cooperation Association for Bio & Socio - Sciences Advancement.

Entities:  

Keywords:  healthcare; inborn errors metabolism; knowledge; perception

Year:  2022        PMID: 36200028      PMCID: PMC9437999          DOI: 10.5582/irdr.2022.01062

Source DB:  PubMed          Journal:  Intractable Rare Dis Res        ISSN: 2186-3644


  27 in total

1.  [Health and socio-educational needs of the families and children with rare metabolic diseases: Qualitative study in a tertiary hospital].

Authors:  Eva María Tejada-Ortigosa; Katherine Flores-Rojas; Laura Moreno-Quintana; María Carmen Muñoz-Villanueva; Juan Luis Pérez-Navero; Mercedes Gil-Campos
Journal:  An Pediatr (Engl Ed)       Date:  2018-05-28

2.  General knowledge and opinion of future health care and non-health care professionals on rare diseases.

Authors:  Enrique Ramalle-Gómara; Elena Ruiz; Carmen Quiñones; Sergio Andrés; Javier Iruzubieta; Josefa Gil-de-Gómez
Journal:  J Eval Clin Pract       Date:  2014-11-03       Impact factor: 2.431

3.  Metabolic Clinic Atlas: Organization of Care for Children with Inherited Metabolic Disease in Canada.

Authors:  Monica F Lamoureux; Kylie Tingley; Jonathan B Kronick; Beth K Potter; Alicia K J Chan; Doug Coyle; Linda Dodds; Sarah Dyack; Annette Feigenbaum; Michael Geraghty; Jane Gillis; Cheryl Rockman-Greenberg; Aneal Khan; Julian Little; Jennifer MacKenzie; Bruno Maranda; Aizeddin Mhanni; John J Mitchell; Grant Mitchell; Anne-Marie Laberge; Murray Potter; Chitra Prasad; Komudi Siriwardena; Kathy N Speechley; Sylvia Stockler; Yannis Trakadis; Lesley Turner; Clara Van Karnebeek; Kumanan Wilson; Pranesh Chakraborty
Journal:  JIMD Rep       Date:  2015-02-26

Review 4.  Inborn Errors of Metabolism.

Authors:  Fatih Ezgu
Journal:  Adv Clin Chem       Date:  2016-01-23       Impact factor: 5.394

5.  Oral health status of children with phenylketonuria.

Authors:  Elif Ballikaya; Yilmaz Yildiz; Hatice Serap Sivri; Aysegul Tokatli; Ali Dursun; Seval Olmez; Turgay Coskun; Meryem Uzamis Tekcicek
Journal:  J Pediatr Endocrinol Metab       Date:  2020-03-26       Impact factor: 1.634

Review 6.  Research, diagnosis and education in inborn errors of metabolism in Colombia: 20 years' experience from a reference center.

Authors:  Olga Y Echeverri; Johana M Guevara; Ángela J Espejo-Mojica; Andrea Ardila; Ninna Pulido; Magda Reyes; Alexander Rodriguez-Lopez; Carlos J Alméciga-Díaz; Luis A Barrera
Journal:  Orphanet J Rare Dis       Date:  2018-08-16       Impact factor: 4.123

Review 7.  Global birth prevalence and mortality from inborn errors of metabolism: a systematic analysis of the evidence.

Authors:  Donald Waters; Davies Adeloye; Daisy Woolham; Elizabeth Wastnedge; Smruti Patel; Igor Rudan
Journal:  J Glob Health       Date:  2018-12       Impact factor: 4.413

8.  Nutritional management of phenylalanine hydroxylase (PAH) deficiency in pediatric patients in Canada: a survey of dietitians' current practices.

Authors:  Nataliya Yuskiv; Beth K Potter; Sylvia Stockler; Keiko Ueda; Alette Giezen; Barbara Cheng; Erica Langley; Suzanne Ratko; Valerie Austin; Maggie Chapman; Pranesh Chakraborty; Jean Paul Collet; Amy Pender
Journal:  Orphanet J Rare Dis       Date:  2019-01-08       Impact factor: 4.123

Review 9.  Mitochondrial diseases caused by mtDNA mutations: a mini-review.

Authors:  Anastasia I Ryzhkova; Margarita A Sazonova; Vasily V Sinyov; Elena V Galitsyna; Mariya M Chicheva; Alexandra A Melnichenko; Andrey V Grechko; Anton Yu Postnov; Alexander N Orekhov; Tatiana P Shkurat
Journal:  Ther Clin Risk Manag       Date:  2018-10-09       Impact factor: 2.423

10.  New literacy challenge for the twenty-first century: genetic knowledge is poor even among well educated.

Authors:  Robert Chapman; Maxim Likhanov; Fatos Selita; Ilya Zakharov; Emily Smith-Woolley; Yulia Kovas
Journal:  J Community Genet       Date:  2018-03-28
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