Hieke Barends1, Femke Botman1, Ella Walstock1, Nikki Claassen-van Dessel1, Johannes C van der Wouden1, Tim Olde Hartman2, Joost Dekker3, Henriëtte E van der Horst1. 1. Department of General Practice, Amsterdam UMC, Vrije Universiteit Amsterdam and Amsterdam Public Health Research Institute, Amsterdam. 2. Department of Primary and Community Care, Donders Institute for Brain, Cognition and Behaviour, Radboud University Nijmegen Medical Center, Nijmegen. 3. Amsterdam Public Health Research Institute, Amsterdam, and Department of Rehabilitation Medicine and Department of Psychiatry, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam.
Abstract
BACKGROUND: GPs can play a central role in the care of patients with persistent somatic symptoms (PSS). To date, little is known about these patients' experiences relating to their coordination of care. AIM: To explore the experiences of patients with PSS relating to coordination of care - in particular by their GP - during their illness trajectory. DESIGN AND SETTING: This qualitative study was carried out from January to April 2019 in the Netherlands as part of a multicentre prospective cohort study on the course of PSS (PROSPECTS). METHOD: Thematic content analysis of 15 interviews. RESULTS: Three themes were identified: care fragmentation during the diagnostic trajectory; transition from the search for a cure to coping; and reframing to coping: GPs' role in facilitating supportive care. Patients experienced a lack of collaboration from healthcare workers during the diagnostic trajectory. Guidance by their GP in a process of shared decision making was positively valued by patients. Moving the focus from searching for a cure to coping with symptoms was described as a 'personal endeavour', made even more challenging by the ongoing uncertainty experienced by patients. When reframing to coping, the extent to which patients felt aligned with their GP played an important role in whether their supportive care request was met. CONCLUSION: Patients experienced difficulties when navigating the diagnostic trajectory and shifting to coping. The findings of this study underline the importance of collaboration between GPs and other healthcare professionals during the diagnostic trajectory. The authors recommend that GPs provide proactive guidance and are sensitive to patients who shift to coping by providing them with supportive care in a process of shared decision making.
BACKGROUND: GPs can play a central role in the care of patients with persistent somatic symptoms (PSS). To date, little is known about these patients' experiences relating to their coordination of care. AIM: To explore the experiences of patients with PSS relating to coordination of care - in particular by their GP - during their illness trajectory. DESIGN AND SETTING: This qualitative study was carried out from January to April 2019 in the Netherlands as part of a multicentre prospective cohort study on the course of PSS (PROSPECTS). METHOD: Thematic content analysis of 15 interviews. RESULTS: Three themes were identified: care fragmentation during the diagnostic trajectory; transition from the search for a cure to coping; and reframing to coping: GPs' role in facilitating supportive care. Patients experienced a lack of collaboration from healthcare workers during the diagnostic trajectory. Guidance by their GP in a process of shared decision making was positively valued by patients. Moving the focus from searching for a cure to coping with symptoms was described as a 'personal endeavour', made even more challenging by the ongoing uncertainty experienced by patients. When reframing to coping, the extent to which patients felt aligned with their GP played an important role in whether their supportive care request was met. CONCLUSION: Patients experienced difficulties when navigating the diagnostic trajectory and shifting to coping. The findings of this study underline the importance of collaboration between GPs and other healthcare professionals during the diagnostic trajectory. The authors recommend that GPs provide proactive guidance and are sensitive to patients who shift to coping by providing them with supportive care in a process of shared decision making.
Authors: John W Warren; Daniel J Clauw; Ursula Wesselmann; Fred M Howard; Lisa Gallicchio; Vadim Morozov Journal: J Psychosom Res Date: 2014-09-16 Impact factor: 3.006
Authors: Juul Houwen; Peter Lbj Lucassen; Hugo W Stappers; Willem Jj Assendelft; Sandra van Dulmen; Tim C Olde Hartman Journal: Br J Gen Pract Date: 2017-08-28 Impact factor: 5.386
Authors: John W Warren; Vadim Morozov; Fred M Howard; Ursula Wesselmann; Lisa Gallicchio; Patricia Langenberg; Daniel J Clauw Journal: J Psychosom Res Date: 2013-11-01 Impact factor: 3.006
Authors: Nikki Claassen-van Dessel; Johannes C van der Wouden; Joost Dekker; Henriette E van der Horst Journal: J Psychosom Res Date: 2016-01-12 Impact factor: 3.006
Authors: Hieke Barends; Ella Walstock; Femke Botman; Anja de Kruif; Nikki Claassen; Johannes C van der Wouden; Tim Olde Hartman; Joost Dekker; Henriette van der Horst Journal: BMJ Open Date: 2020-07-13 Impact factor: 2.692