Literature DB >> 36118129

Red tape, slow emergency, and chronic disease management in post-María Puerto Rico.

Mark Padilla1, Sheilla L Rodríguez-Madera1, Nelson Varas-Díaz1, Kevin Grove1, Sergio Rivera2, Kariela Rivera3, Violeta Contreras3, Jeffrey Ramos4, Ricardo Vargas Molina3.   

Abstract

This paper draws upon the notion of slow emergency as a framework to interpret ethnographic and qualitative findings on the challenges faced by Puerto Ricans with chronic conditions and health sector representatives throughout the island during and after Hurricane María. We conducted participant observation and qualitative interviews with chronic disease patients (n=20) health care providers and administrators (n=42), and policy makers (n=5) from across the island of Puerto Rico in 2018 and 2019. Many Puerto Ricans coping with chronic diseases during and after María experienced bureaucratic red tape as the manifestation of colonial legacies of disaster management and health care. They describe a precarious existence in perpetual "application pending" status, waiting for services that were not forthcoming. Drawing on ethnographically informed case examples, we discuss the effects of these bureaucratic barriers on persons with three chronic conditions: renal disease, opioid dependency, and HIV/AIDS. We argue that while emergency management approaches often presume a citizen-subject with autonomous capacity to prepare for presumably transient disasters and envision a 'post-disaster future' beyond the immediate crisis, Puerto Rican voices draw attention to the longer, sustained, slow emergency of colonial governance.

Entities:  

Keywords:  Puerto Rico; coloniality; disaster management; health care system; slow emergency

Year:  2021        PMID: 36118129      PMCID: PMC9481060          DOI: 10.1080/09581596.2021.1998376

Source DB:  PubMed          Journal:  Crit Public Health        ISSN: 0958-1596


  12 in total

1.  Progress in emergency preparedness for dialysis care 10 years after Hurricane Katrina.

Authors:  Lemuel Dent; Kristen Finne; Nicole Lurie
Journal:  Am J Kidney Dis       Date:  2015-11       Impact factor: 8.860

2.  Hurricane Maria and Puerto Rico: A Physician Looks Back at the Storm.

Authors:  Jennifer Abbasi
Journal:  JAMA       Date:  2018-08-21       Impact factor: 56.272

3.  A disease unlike any other? Why HIV remains exceptional in the age of treatment.

Authors:  Eileen Moyer; Anita Hardon
Journal:  Med Anthropol       Date:  2014

4.  The View from Puerto Rico - Hurricane Maria and Its Aftermath.

Authors:  Carmen D Zorrilla
Journal:  N Engl J Med       Date:  2017-10-11       Impact factor: 91.245

5.  Puerto Rico's health system after Hurricane Maria.

Authors:  Ted Alcorn
Journal:  Lancet       Date:  2017-10-05       Impact factor: 79.321

6.  Hurricane Maria: A Preventable Humanitarian and Health Care Crisis Unveiling the Puerto Rican Dilemma.

Authors:  Jesse Roman
Journal:  Ann Am Thorac Soc       Date:  2018-03

7.  Mortality in Puerto Rico after Hurricane Maria.

Authors:  Nishant Kishore; Domingo Marqués; Ayesha Mahmud; Mathew V Kiang; Irmary Rodriguez; Arlan Fuller; Peggy Ebner; Cecilia Sorensen; Fabio Racy; Jay Lemery; Leslie Maas; Jennifer Leaning; Rafael A Irizarry; Satchit Balsari; Caroline O Buckee
Journal:  N Engl J Med       Date:  2018-05-29       Impact factor: 91.245

8.  High Prevalence of Diabetes and Prediabetes and Their Coexistence with Cardiovascular Risk Factors in a Hispanic Community.

Authors:  Cynthia M Pérez; Marievelisse Soto-Salgado; Erick Suárez; Manuel Guzmán; Ana Patricia Ortiz
Journal:  J Immigr Minor Health       Date:  2015-08

9.  AIDS stigma combinations in a sample of Puerto Rican health professionals: qualitative and quantitative evidence.

Authors:  Nelson Varas Díaz; Souhail Malavé Rivera; Francheska Cintrón Bou
Journal:  P R Health Sci J       Date:  2008-06       Impact factor: 0.705

10.  Migration to the US among rural Puerto Ricans who inject drugs: influential factors, sources of support, and challenges for harm reduction interventions.

Authors:  R Abadie; P Habecker; C Gelpi-Acosta; K Dombrowski
Journal:  BMC Public Health       Date:  2019-12-19       Impact factor: 3.295

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