Alexa J Watach1,2, Chanelle T Bishop-Gilyard3,4,5, Helen Ku6, Olufunke Afolabi-Brown6, Elizabeth Prout Parks4,7,8, Melissa S Xanthopoulos4,6. 1. Division of Sleep Medicine, University of Pennsylvania, USA. 2. School of Nursing, University of Pennsylvania, USA. 3. Center for Weight and Eating Disorders, University of Pennsylvania, USA. 4. The Healthy Weight Program, Children's Hospital of Philadelphia, USA. 5. Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children's Hospital of Philadelphia, USA. 6. Division of Pulmonary and Sleep Medicine, Children's Hospital of Philadelphia, USA. 7. Department of Pediatrics, Perelman School of Medicine, University of Pennsylvania, USA. 8. Division of Gastroenterology, Hepatology and Nutrition, Children's Hospital of Philadelphia, USA.
Abstract
Objective: To address positive airway pressure (PAP) adherence in adolescents diagnosed with obstructive sleep apnoea (OSA) by pilot testing a novel, online, facilitated, peer-support and health education programme for families. Design Setting and Methods: Families participated in separate Facebook peer-groups (adolescent [n=6] and parent [n=6]) for four weeks, followed by face-to-face interviews. Participants received OSA and PAP educational videos and posts, engaged with questions and polls, and viewed de-identified postings of peer PAP use data. Results: Adolescent participants were young Black males aged 13-17 years (n=6) with obesity (n=5), severe sleep apnoea (100%) and 4-15 months of prior PAP use. Parent participants were mothers (n=4) and fathers (n=2). Four of six young males increased their mean PAP use during the intervention period. Overall, parents were more engaged with the Facebook group page than adolescents, but interviews revealed the online group/peer-support and education provided was highly regarded and appreciated by families. Parents were particularly appreciative of being involved in care and diagnosis in this way. Conclusion: Results of this pilot trial provide important data regarding intervention design, content, and delivery approaches to be considered in the development of future interventions aiming to engage families and improve adolescent PAP adherence.
Objective: To address positive airway pressure (PAP) adherence in adolescents diagnosed with obstructive sleep apnoea (OSA) by pilot testing a novel, online, facilitated, peer-support and health education programme for families. Design Setting and Methods: Families participated in separate Facebook peer-groups (adolescent [n=6] and parent [n=6]) for four weeks, followed by face-to-face interviews. Participants received OSA and PAP educational videos and posts, engaged with questions and polls, and viewed de-identified postings of peer PAP use data. Results: Adolescent participants were young Black males aged 13-17 years (n=6) with obesity (n=5), severe sleep apnoea (100%) and 4-15 months of prior PAP use. Parent participants were mothers (n=4) and fathers (n=2). Four of six young males increased their mean PAP use during the intervention period. Overall, parents were more engaged with the Facebook group page than adolescents, but interviews revealed the online group/peer-support and education provided was highly regarded and appreciated by families. Parents were particularly appreciative of being involved in care and diagnosis in this way. Conclusion: Results of this pilot trial provide important data regarding intervention design, content, and delivery approaches to be considered in the development of future interventions aiming to engage families and improve adolescent PAP adherence.
Authors: Nira A Goldstein; Tehila Abramowitz; Jeremy Weedon; Bernard Koliskor; Stephen Turner; Emanuela Taioli Journal: J Clin Sleep Med Date: 2011-04-15 Impact factor: 4.062
Authors: Anna C Ciao; Janet D Latner; Krista E Brown; Daria S Ebneter; Carolyn B Becker Journal: Int J Eat Disord Date: 2015-05-08 Impact factor: 4.861